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JANET MALEK

TitleProfessor
InstitutionBaylor College of Medicine
DepartmentDepartment of Medicine
AddressOne Baylor Plaza
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    Other Positions
    TitleProfessor
    InstitutionBaylor College of Medicine
    DepartmentCenter for Medical Ethics and Health Policy
    DivisionCtr for Med Ethics & Health Policy


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    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
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    PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
    1. De Bie FR, Paul J, Malek J, Rent S, Verweij EJT, Church J, Gebb J, Weiss EM, Gray BW, Johnston H, Nava C, Moline K, Antiel RM. Correction: Artificial womb technology; a scoping review of ethical considerations. J Perinatol. 2026 Jun 02. PMID: 42230812.
      Citations:    
    2. De Bie FR, Paul J, Malek J, Rent S, Verweij EJT, Church J, Gebb J, Weiss E, Gray BW, Johnston H, Nava C, Moline K, Antiel RM. Artificial womb technology; a scoping review of ethical considerations. J Perinatol. 2026 Apr 13. PMID: 41975204.
      Citations:    
    3. Gutierrez AM, Robinson JO, Allen-Rhoades WA, Smith HS, Canfield I, Hsu RL, Scollon SR, Desrosiers-Battu LR, Schneider NM, Lin FY, Parsons DW, Plon SE, Majumder MA, Malek J, McGuire AL. Treatment Decision-Making Roles and Preferences Among Adolescents and Young Adults With Cancer. Pediatr Blood Cancer. 2026 Jun; 73(6):e70235. PMID: 41852319.
      Citations:    Fields:    Translation:Humans
    4. Omelianchuk A, Smolenski J, Kaplan H, Shea M, Smith JN, Bibler T, Horner C, Malek J. Reflecting on Principlism: Explaining, But Not Guiding, Clinical Ethics Analysis. Am J Bioeth. 2026 03; 26(3):19-25. PMID: 41090953.
      Citations:    Fields:    Translation:Humans
    5. Malek J. Getting To the Bottom of Surrogate Skirmishes: A Response To Fiester's "Surrogate Wars". HEC Forum. 2025 Dec; 37(4):463-470. PMID: 41094336.
      Citations: 1     Fields:    Translation:Humans
    6. Malek J. Rogue One? The Rise of the One-Year Clinical Ethics Fellowship. Am J Bioeth. 2025 Oct; 25(10):72-74. PMID: 40965504.
      Citations:    
    7. Malek J, Levchenko A, Robinson JO, Fong J, Lin CR, Jackson GR, Blumenthal-Barby J, Shulman JM, McGuire AL. Dilemmas in diagnosing Alzheimer's disease: The peril and promise of self-fulfilling prophecies. J Alzheimers Dis. 2025 06; 105(3):736-739. PMID: 40255038.
      Citations:    Fields:    Translation:Humans
    8. Robertson-Preidler J, Kim M, Fantus S, Malek J. Whether to Offer Interventions at the End of Life: What Physicians Consider and How Clinical Ethicists Can Help. AJOB Empir Bioeth. 2025 Apr-Jun; 16(2):103-111. PMID: 39903050.
      Citations:    
    9. Smith HS, Rubanovich CK, Robinson JO, Levchenko AN, Classen SA, Malek J, Buchanan AH, Biesecker B, Brothers KB, Wilfond BS, Rini C, Bloss CS, McGuire AL, Knight SJ, Buchanan AH, Biesecker B. Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening. Genet Med. 2024 11; 26(11):101240. PMID: 39140259; PMCID: PMC11562923.
      Citations: 5     Fields:    Translation:Humans
    10. Gutierrez AM, Robinson JO, Smith HS, Desrosiers LR, Scollon SR, Canfield I, Hsu RL, Schneider NM, Parsons DW, Plon SE, Allen-Rhoades W, Majumder MA, Malek J, McGuire AL, Desrosiers-Battu LR. Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents. Genet Med. 2024 08; 26(8):101168. PMID: 38767058; PMCID: PMC11534009.
      Citations:    Fields:    Translation:Humans
    11. Carnago L, Knisely MR, Malek J. Ethical considerations and decision making in opioid prescribing for chronic pain: A case study in rheumatology practice. J Am Assoc Nurse Pract. 2024 May 01; 36(5):300-306. PMID: 38330235.
      Citations:    
    12. Smith HS, Rubanovich CK, Robinson JO, Levchenko AN, Classen SA, Malek J, Biesecker B, Brothers KB, Wilfond BS, Rini C, Knight SJ, McGuire AL, Bloss CS. Measuring perceived utility of genomic sequencing: Development and validation of?the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing. Genet Med. 2024 08; 26(8):101146. PMID: 38676451; PMCID: PMC11298290.
      Citations: 8     Fields:    Translation:Humans
    13. Malek J, Shamshirsaz AA, Wilpers A, Premkumar A, Bahtiyar MO. The Right to Refuse Obstetrical Interventions: In Principle, in Practice. Am J Bioeth. 2024 02; 24(2):44-45. PMID: 38295264.
      Citations:    
    14. Ness TE, Tabb ZJ, Malek J, Placencia FX. Uninformed Origins: Should We Be Advising Parents on the Source of Medicines and Therapies? Health Care Anal. 2023 Dec; 31(3-4):186-195. PMID: 37535146.
      Citations:    Fields:    Translation:Humans
    15. Gutierrez AM, Robinson JO, Raesz-Martinez R, Canfield I, Majumder MA, Scollon S, Desrosiers LR, Hsu RL, Allen-Rhoades W, Parsons DW, Plon SE, McGuire AL, Malek J. Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research. J Adolesc Young Adult Oncol. 2023 10; 12(5):773-781. PMID: 36595372; PMCID: PMC10611971.
      Citations:    Fields:    
    16. Malek J. Reconceptualizing Identity and Ethics in the Context of Conception. Am J Bioeth. 2022 09; 22(9):42-44. PMID: 36040893.
      Citations:    
    17. Childress A, Bibler T, Moore B, Nelson RH, Robertson-Preidler J, Schuman O, Malek J. From Bridge to Destination? Ethical Considerations Related to Withdrawal of ECMO Support over the Objections of Capacitated Patients. Am J Bioeth. 2023 06; 23(6):5-17. PMID: 35616323.
      Citations:    Fields:    
    18. Malek J. A Call for Evidence-Based Clinical Ethics Consultation. Am J Bioeth. 2022 04; 22(4):40-42. PMID: 35420524.
      Citations:    
    19. Bibler TM, Nelson RH, Moore B, Malek J, Majumder MA. Building Effective Mentoring Relationships During Clinical Ethics Fellowships: Pedagogy, Programs, and People. HEC Forum. 2024 Mar; 36(1):1-29. PMID: 35218454.
      Citations:    Fields:    
    20. Smith HS, Brothers KB, Knight SJ, Ackerman SL, Rini C, Veenstra DL, McGuire AL, Wilfond BS, Malek J. Conceptualization of utility in translational clinical genomics research. Am J Hum Genet. 2021 11 04; 108(11):2027-2036. PMID: 34687653; PMCID: PMC8595895.
      Citations:    Fields:    Translation:Humans
    21. Smith HS, Morain SR, Robinson JO, Canfield I, Malek J, Rubanovich CK, Bloss CS, Ackerman SL, Biesecker B, Brothers KB, Goytia CN, Horowitz CR, Knight SJ, Koenig B, Kraft SA, Outram S, Rini C, Shipman KJ, Waltz M, Wilfond B, McGuire AL. Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development. Patient. 2022 05; 15(3):317-328. PMID: 34658003; PMCID: PMC9013723.
      Citations:    Fields:    Translation:Humans
    22. Hsu RL, Gutierrez AM, Schellhammer SK, Robinson JO, Scollon S, Street RL, Salisbury AN, Pereira S, Plon SE, Malek J, Parsons DW, McGuire AL. Pediatric Oncologists' Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care. J Pers Med. 2021 Jun 18; 11(6). PMID: 34207141; PMCID: PMC8235493.
      Citations: 3     
    23. M Farrell R, Malek J, Thomas Scott C. Beyond babies: Implications of human genome editing for women, children, and families. Account Res. 2022 02; 29(2):67-76. PMID: 33667136.
      Citations:    
    24. Bryant BE, Adler AC, Mann DG, Malek J. "You can't make me!" Managing adolescent dissent to anesthesia. Paediatr Anaesth. 2021 04; 31(4):397-403. PMID: 33386692.
      Citations:    Fields:    Translation:Humans
    25. Malek J. Reed on expressivism at the end of life: a bridge too far. J Med Ethics. 2020 08; 46(8):552. PMID: 32665255.
      Citations:    
    26. Malek J. Defending the Inclusion of Categorical Exclusion Criteria in Crisis Standard of Care Frameworks. Am J Bioeth. 2020 07; 20(7):156-158. PMID: 32716813.
      Citations:    
    27. Lowery K, Rosen T, Malek J. iPLEDGE Must Abstain from Abstinence. J Clin Aesthet Dermatol. 2020 Jun; 13(6):54-56. PMID: 32884622; PMCID: PMC7442303.
      Citations: 2     
    28. Malek J, Bibler TM, Childress AM, Crist J, Fedson S, Horner C, Moore B, Nelson RH. Critical Conversations: Say This, Not That. Chest. 2020 09; 158(3):896-898. PMID: 32376149.
      Citations:    Fields:    Translation:Humans
    29. Horner C, Childress A, Fantus S, Malek J. What the HEC-C? An Analysis of the Healthcare Ethics Consultant-Certified Program: One Year in. Am J Bioeth. 2020 Mar; 20(3):9-18. PMID: 32105205.
      Citations: 2     Fields:    Translation:Humans
    30. Malek J, Horner C. The Top 10 Questions Facing the Field of Clinical Ethics in 2020: Reflections on the Evolving Clinical Ethics UnConference. J Clin Ethics. 2020; 31(3):233-240. PMID: 32960805.
      Citations:    Fields:    Translation:Humans
    31. Bibler TM, Crist JM, Malek J, Childress AM. "Do we have to replace the balloon pump when it fails?" Hastings Cent Rep. 2020 Jan; 50(1):10-13. PMID: 32068279.
      Citations:    Fields:    Translation:Humans
    32. Nelson RH, Malek J. Clinical Ethics Expertise: Beyond Justified Normative Recommendations? Am J Bioeth. 2019 11; 19(11):82-84. PMID: 31661422.
      Citations:    
    33. Stephens AL, Bruce CR, Childress A, Malek J. Why Families Get Angry: Practical Strategies for Clinical Ethics Consultants to Rebuild Trust Between Angry Families and Clinicians in the Critical Care Environment. HEC Forum. 2019 Sep; 31(3):201-217. PMID: 30820819.
      Citations: 1     Fields:    Translation:Humans
    34. Malek J, Pereira S, Robinson JO, Gutierrez AM, Slashinski MJ, Parsons DW, Plon SE, McGuire AL. Responsibility, culpability, and parental views on genomic testing for seriously ill children. Genet Med. 2019 12; 21(12):2791-2797. PMID: 31186522; PMCID: PMC9089459.
      Citations: 7     Fields:    Translation:Humans
    35. Puri K, Malek J, de la Uz CM, Lantos J, Cabrera AG, Frug? E. Allowing Adolescents to Weigh Benefits and Burdens of High-stakes Therapies. Pediatrics. 2019 07; 144(1). PMID: 31167936.
      Citations: 1     Fields:    Translation:Humans
    36. Malek J. The Appropriate Role of a Clinical Ethics Consultant's Religious Worldview in Consultative Work: Nearly None. HEC Forum. 2019 Jun; 31(2):91-102. PMID: 30229427.
      Citations:    
    37. Cunningham TV, Chatburn A, Coleman C, DeRenzo EG, Furfari K, Frye J, Glover AC, Kenney M, Nortj? N, Malek J, Repenshek M, Sheppard F, Crites JS. Comprehensive Quality Assessment in Clinical Ethics. J Clin Ethics. 2019; 30(3):284-296. PMID: 31573973.
      Citations:    
    38. Morain SR, Malek J. Minimum Age of Sale for Tobacco Products and Electronic Cigarettes: Ethical Acceptability of US "Tobacco 21 Laws". Am J Public Health. 2017 09; 107(9):1401-1405. PMID: 28727531; PMCID: PMC5551602.
      Citations: 6     Fields:    Translation:HumansPHPublic Health
    39. Malek J, Slashinski MJ, Robinson JO, Gutierrez AM, Parsons DW, Plon SE, McCullough LB, McGuire AL. Parental Perspectives on Whole Exome Sequencing in Pediatric Cancer: A Typology of Perceived Utility. JCO Precis Oncol. 2017; 1. PMID: 31886451; PMCID: PMC6934167.
      Citations: 24     Fields:    
    40. Malek J. Maternal Decision-making During Pregnancy: Parental Obligations and Cultural Differences. Best Pract Res Clin Obstet Gynaecol. 2017 Aug; 43:10-20. PMID: 28318971.
      Citations:    
    41. Johnson G, Levison J, Malek J. Should Providers Discuss Breastfeeding With Women Living With HIV in High-Income Countries? An Ethical Analysis. Clin Infect Dis. 2016 Nov 15; 63(10):1368-1372. PMID: 27572099.
      Citations: 4     Fields:    Translation:Humans
    42. Malek J. Responding to refusal of recommended cesarean section: Promoting good parenting. Semin Perinatol. 2016 06; 40(4):216-21. PMID: 26803168.
      Citations:    
    43. Bruce CR, Majumder MA, Stephens A, Malek J, McGuire A. Cultivating Administrative Support for a Clinical Ethics Consultation Service. J Clin Ethics. 2016; 27(4):341-351. PMID: 28001140.
      Citations:    Fields:    Translation:Humans
    44. Malek J. Parental Obligations Regarding Fetal Risk: Finding the Appropriate Analogy. Am J Bioeth. 2016; 16(2):27-8. PMID: 26832088.
      Citations:    
    45. Carrese JA, Malek J, Watson K, Lehmann LS, Green MJ, McCullough LB, Geller G, Braddock CH, Doukas DJ. The essential role of medical ethics education in achieving professionalism: the Romanell Report. Acad Med. 2015 Jun; 90(6):744-52. PMID: 25881647.
      Citations: 43     Fields:    Translation:Humans
    46. Malek J. Routine paternity testing: finding the right ethical paradigm. Am J Bioeth. 2013; 13(5):44-5. PMID: 23557047.
      Citations:    
    47. Malek J, Daar J. The case for a parental duty to use preimplantation genetic diagnosis for medical benefit. Am J Bioeth. 2012; 12(4):3-11. PMID: 22452463.
      Citations:    
    48. Malek J. Use or refuse reproductive genetic technologies: which would a 'good parent' do? Bioethics. 2013 Feb; 27(2):59-64. PMID: 21726259.
      Citations:    
    49. Malek J. Uniqueness, exploitation, and relative risk standards in adolescent research. Am J Bioeth. 2011 Jun; 11(6):23-5. PMID: 21678211.
      Citations:    
    50. Malek J. To tell or not to tell? The ethical dilemma of the would-be whistleblower. Account Res. 2010 May; 17(3):115-29. PMID: 20461568.
      Citations:    
    51. Malek J. Deciding against disability: does the use of reproductive genetic technologies express disvalue for people with disabilities? J Med Ethics. 2010 Apr; 36(4):217-21. PMID: 20338932.
      Citations:    
    52. Malek J. What really is in a child' s best interest? Toward a more precise picture of the interests of children. J Clin Ethics. 2009; 20(2):175-82. PMID: 19554826.
      Citations:    
    53. Malek J. Throwing the baby out with the bathwater? Moral status and rights-based moral obligations. Am J Bioeth. 2008 Jul; 8(7):46-7; discussion W4-6. PMID: 18759187.
      Citations:    
    54. Malek J, Kopelman LM. The well-being of subjects and other parties in genetic research and testing. J Med Philos. 2007 Jul-Aug; 32(4):311-9. PMID: 17712705.
      Citations:    
    55. Malek J. Understanding risks and benefits in research on reproductive genetic technologies. J Med Philos. 2007 Jul-Aug; 32(4):339-58. PMID: 17712707.
      Citations:    
    56. Malek J. Identity, harm, and the ethics of reproductive technology. J Med Philos. 2006 Feb; 31(1):83-95. PMID: 16464771.
      Citations:    
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