Item Type | Name |
Academic Article
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Research ethics and the challenge of whole-genome sequencing.
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Academic Article
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Currents in contemporary ethics. Direct-to-consumer genetic testing: is it the practice of medicine?
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Academic Article
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Direct-to-consumer genetic testing: perceptions, problems, and policy responses.
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Academic Article
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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
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Academic Article
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Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider.
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Academic Article
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Identifiability of DNA data: the need for consistent federal policy.
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Academic Article
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An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons.
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Academic Article
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Science and regulation. Regulating direct-to-consumer personal genome testing.
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Academic Article
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Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.
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Concept
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Public Policy
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Concept
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Health Policy
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Academic Article
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Policy uncertainty, sequencing, and cell lines.
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Academic Article
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Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate.
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Award or Honor Receipt
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Clinical Integration of Whole Genome Sequencing: A Policy Analysis (PI)
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Academic Article
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Clinical integration of next generation sequencing: a policy analysis.
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Academic Article
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Development of the clinical next-generation sequencing industry in a shifting policy climate.
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Academic Article
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Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.
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Academic Article
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Developing context-specific next-generation sequencing policy.
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Academic Article
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Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel.
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Academic Article
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It depends whose data are being shared: considerations for genomic data sharing policies.
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Academic Article
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Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.
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Academic Article
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Barriers to clinical adoption of next-generation sequencing: a policy Delphi panel's solutions.
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Academic Article
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Citizen science, public policy.
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Grant
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The ethics of consent for the public release of potentially identifiable DNA data
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Grant
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Neuroethics of aDBS Systems Targeting Neuropsychiatric and Movement Disorders
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Grant
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Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of Texas: The KidsCanSeq Study
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Grant
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Building the Medical Information Commons: Participant Engagement and Policy
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Grant
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Clinical Integration of Whole Genome Sequencing: A Policy Analysis
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Concept
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Policy
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Academic Article
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Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?
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Academic Article
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Ventilator Triage Policies During the COVID-19 Pandemic at U.S. Hospitals Associated With Members of the Association of Bioethics Program Directors.
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Grant
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After the Golden State Killer: Public Preferences and Policy Implications of Police Use of Genetic Data (The ForenSeq Study)
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Academic Article
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Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation.
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Academic Article
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Pressing regulatory challenges for psychedelic medicine.
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Academic Article
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Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi.
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