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MCGUIRE, AMY
One or more keywords matched the following items that are connected to MCGUIRE, AMY
Item TypeName
Academic Article Please don't call my mom: pediatric consent and confidentiality.
Concept Parent-Child Relations
Concept Parents
Academic Article Pediatric data sharing in genomic research: attitudes and preferences of parents.
Academic Article Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.
Academic Article Is Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid Tumors.
Academic Article Potential Psychosocial Risks of Sequencing Newborns.
Academic Article Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project.
Academic Article Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project.
Academic Article Challenging the Current Recommendations for Carrier Testing in Children.
Academic Article Returning a Genomic Result for an Adult-Onset Condition to the Parents of a Newborn: Insights From the BabySeq Project.
Academic Article Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents.
Grant The ethics of consent for the public release of potentially identifiable DNA data
Grant Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of Texas: The KidsCanSeq Study
Academic Article Responsibility, culpability, and parental views on genomic testing for seriously ill children.
Academic Article Effects of participation in a U.S. trial of newborn genomic sequencing on parents at risk for depression.
Academic Article Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial.
Academic Article Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.
Academic Article Parents' decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project.
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  • Parents