| Item Type | Name |
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Academic Article
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Medicine. The future of personal genomics.
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Academic Article
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The complete genome of an individual by massively parallel DNA sequencing.
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Academic Article
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Personalized genomic information: preparing for the future of genetic medicine.
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Academic Article
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To share or not to share: a randomized trial of consent for data sharing in genome research.
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Academic Article
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Meeting the growing demands of genetic research.
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Academic Article
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Return of research results from genomic biobanks: a call for data.
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Academic Article
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Research ethics recommendations for whole-genome research: consensus statement.
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Academic Article
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The need for medical education reform: genomics and the changing nature of health information.
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Academic Article
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Health system implications of direct-to-consumer personal genome testing.
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Academic Article
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Informed consent in genomics and genetic research.
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Academic Article
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Identifying personal genomes by surname inference.
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Academic Article
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Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
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Academic Article
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Return of research results from genomic biobanks: cost matters.
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Academic Article
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Point-counterpoint. Ethics and genomic incidental findings.
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Academic Article
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Developing a tissue resource to characterize the genome of pancreatic cancer.
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Academic Article
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The ethical use of existing samples for genome research.
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Academic Article
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Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.
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Academic Article
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Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.
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Academic Article
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The legal risks of returning results of genomics research.
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Academic Article
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The Human Microbiome Project: a community resource for the healthy human microbiome.
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Academic Article
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The indispensable role of professional judgment in genomic medicine.
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Concept
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Genomics
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Academic Article
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Participants' recall and understanding of genomic research and large-scale data sharing.
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Academic Article
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Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate.
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Academic Article
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Pediatric data sharing in genomic research: attitudes and preferences of parents.
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Academic Article
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Adult genetic risk screening.
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Academic Article
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Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.
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Academic Article
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Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.
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Academic Article
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Development of the clinical next-generation sequencing industry in a shifting policy climate.
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Academic Article
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Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.
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Academic Article
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A one-page summary report of genome sequencing for the healthy adult.
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Academic Article
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GINA, genetic discrimination, and genomic medicine.
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Academic Article
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Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject.
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Academic Article
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Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.
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Academic Article
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Persistent confusion and controversy surrounding gene patents.
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Academic Article
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A curated gene list for reporting results of newborn genomic sequencing.
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Academic Article
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Moving beyond Bermuda: sharing data to build a medical information commons.
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Academic Article
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Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium.
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Academic Article
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Portero versus portador: Spanish interpretation of genomic terminology during whole exome sequencing results disclosure.
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Academic Article
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The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.
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Academic Article
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Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study.
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Academic Article
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Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families.
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Academic Article
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Interpretation of Genomic Sequencing Results in Healthy and Ill Newborns: Results from the BabySeq Project.
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Grant
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The ethics of consent for the public release of potentially identifiable DNA data
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Grant
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Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of Texas: The KidsCanSeq Study
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Grant
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Building the Medical Information Commons: Participant Engagement and Policy
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Grant
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Clinical Integration of Whole Genome Sequencing: A Policy Analysis
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Academic Article
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The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research.
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Academic Article
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Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines.
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Academic Article
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Responsibility, culpability, and parental views on genomic testing for seriously ill children.
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Academic Article
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Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies.
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Academic Article
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Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?
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Academic Article
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Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics.
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Academic Article
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Airmen and health-care providers' attitudes toward the use of genomic sequencing in the US Air Force: findings from the MilSeq Project.
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Academic Article
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The road ahead in genetics and genomics.
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Academic Article
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Toward better governance of human genomic data.
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Academic Article
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Effects of participation in a U.S. trial of newborn genomic sequencing on parents at risk for depression.
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Academic Article
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Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.
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Academic Article
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Conceptualization of utility in translational clinical genomics research.
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Academic Article
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Key drivers of family-level utility of pediatric genomic sequencing: a qualitative analysis to support preference research.
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Academic Article
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Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.
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Academic Article
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Actionability of unanticipated monogenic disease risks in newborn genomic screening: Findings from the BabySeq Project.
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