| Item Type | Name |
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Academic Article
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Respect as an organizing normative category for research ethics.
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Academic Article
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Genetics. No longer de-identified.
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Academic Article
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Taking DNA from the dead.
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Academic Article
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To share or not to share: a randomized trial of consent for data sharing in genome research.
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Academic Article
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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.
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Academic Article
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Meeting the growing demands of genetic research.
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Academic Article
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"Snake-oil," "quack medicine," and "industrially cultured organisms:" biovalue and the commercialization of human microbiome research.
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Academic Article
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Research ethics and the challenge of whole-genome sequencing.
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Academic Article
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Principal investigator views of the IRB system.
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Academic Article
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Consent: informed, simple, implied and presumed.
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Academic Article
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Research ethics recommendations for whole-genome research: consensus statement.
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Academic Article
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Currents in contemporary ethics. Direct-to-consumer genetic testing: is it the practice of medicine?
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Academic Article
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Beneficent persuasion: techniques and ethical guidelines to improve patients' decisions.
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Academic Article
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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
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Academic Article
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Currents in contemporary bioethics. Identifying consanguinity through routine genomic analysis: reporting requirements.
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Academic Article
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Point-counterpoint. Ethics and genomic incidental findings.
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Academic Article
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The ethics of lawyer-ethicists.
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Academic Article
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The ethical use of existing samples for genome research.
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Academic Article
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Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.
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Concept
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Ethics, Medical
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Concept
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Ethics, Research
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Concept
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Ethics Committees, Clinical
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Concept
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Ethics Committees, Research
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Concept
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Ethics Consultation
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Concept
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Ethics, Institutional
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Concept
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Ethics, Clinical
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Academic Article
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Policy uncertainty, sequencing, and cell lines.
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Academic Article
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Participants' recall and understanding of genomic research and large-scale data sharing.
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Academic Article
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Clinical integration of next generation sequencing: a policy analysis.
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Academic Article
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Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject.
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Academic Article
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Is Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid Tumors.
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Academic Article
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The ethics of conducting molecular autopsies in cases of sudden death in the young.
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Academic Article
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Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing.
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Academic Article
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Ethical and Legal Challenges Associated with Public Molecular Autopsies.
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Academic Article
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Cultivating Administrative Support for a Clinical Ethics Consultation Service.
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Grant
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The ethics of consent for the public release of potentially identifiable DNA data
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Academic Article
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Introduction: Sharing Data in a Medical Information Commons.
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Academic Article
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Genomic Data-Sharing Practices.
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Academic Article
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What is a Medical Information Commons?
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Academic Article
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Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.
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Academic Article
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Characterizing the Biomedical Data-Sharing Landscape.
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Academic Article
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Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.
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Academic Article
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Who Owns the Data in a Medical Information Commons?
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Academic Article
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Device Removal Following Brain Implant Research.
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Academic Article
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Learning Health System - Moving from Ethical Frameworks to Practical Implementation.
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Academic Article
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Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?
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Academic Article
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Data Sharing in the Context of Health-Related Citizen Science.
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Academic Article
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A Right to Privacy and Confidentiality: Ethical Medical Care for Patients in United States Immigration Detention.
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Academic Article
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Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics.
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Academic Article
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Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications.
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Academic Article
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Increasing physician participation as subjects in scientific and quality improvement research.
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Academic Article
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An Ethics Framework for Evaluating Ownership Practices in Biomedical Citizen Science.
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Academic Article
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Ethics Education for Healthcare Professionals in the Era of ChatGPT and Other Large Language Models: Do We Still Need It?
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