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This is a "connection" page, showing publications co-authored by AMY MCGUIRE and MARY MAJUMDER.
AMY MCGUIRE
Connection Strength
8.775
MARY MAJUMDER
  1. Large-scale genotype prediction from RNA sequence data necessitates a new ethical and policy framework. Nat Genet. 2024 Aug; 56(8):1537-1540.
    View in: PubMed
    Score: 0.879
  2. Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation. J Pers Med. 2021 Jul 08; 11(7).
    View in: PubMed
    Score: 0.710
  3. Direct-to-Consumer Genetic Testing: Value and Risk. Annu Rev Med. 2021 01 27; 72:151-166.
    View in: PubMed
    Score: 0.666
  4. Data Sharing in the Context of Health-Related Citizen Science. J Law Med Ethics. 2020 03; 48(1_suppl):167-177.
    View in: PubMed
    Score: 0.647
  5. Sharing data under the 21st Century Cures Act. Genet Med. 2017 12; 19(12):1289-1294.
    View in: PubMed
    Score: 0.534
  6. Beyond Our Borders? Public Resistance to Global Genomic Data Sharing. PLoS Biol. 2016 Nov; 14(11):e2000206.
    View in: PubMed
    Score: 0.514
  7. Two cheers for GINA? Genome Med. 2009 Jan 20; 1(1):6.
    View in: PubMed
    Score: 0.299
  8. Treatment Decision-Making Roles and Preferences Among Adolescents and Young Adults With Cancer. Pediatr Blood Cancer. 2026 Jun; 73(6):e70235.
    View in: PubMed
    Score: 0.246
  9. Privacy in perspective: research participants' priorities and concerns related to sharing data generated in human neuroscience studies. Neuroethics. 2025 Aug; 18(2).
    View in: PubMed
    Score: 0.236
  10. The BRAIN Initiative data-sharing ecosystem: Characteristics, challenges, benefits, and opportunities. Elife. 2024 Nov 27; 13.
    View in: PubMed
    Score: 0.225
  11. Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi. J Law Biosci. 2023 Jul-Dec; 10(2):lsad022.
    View in: PubMed
    Score: 0.204
  12. Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability. Front Big Data. 2023; 6:1095119.
    View in: PubMed
    Score: 0.198
  13. Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services. Am J Hum Genet. 2022 03 03; 109(3):486-497.
    View in: PubMed
    Score: 0.186
  14. Airmen and health-care providers' attitudes toward the use of genomic sequencing in the US Air Force: findings from the MilSeq Project. Genet Med. 2020 12; 22(12):2003-2010.
    View in: PubMed
    Score: 0.167
  15. Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs? BMC Med Ethics. 2019 11 21; 20(1):84.
    View in: PubMed
    Score: 0.159
  16. Learning Health System - Moving from Ethical Frameworks to Practical Implementation. J Law Med Ethics. 2019 09; 47(3):454-458.
    View in: PubMed
    Score: 0.156
  17. Introduction: Sharing Data in a Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):7-11.
    View in: PubMed
    Score: 0.151
  18. Genomic Data-Sharing Practices. J Law Med Ethics. 2019 03; 47(1):31-40.
    View in: PubMed
    Score: 0.151
  19. Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):12-20.
    View in: PubMed
    Score: 0.151
  20. Characterizing the Biomedical Data-Sharing Landscape. J Law Med Ethics. 2019 03; 47(1):21-30.
    View in: PubMed
    Score: 0.151
  21. Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):70-87.
    View in: PubMed
    Score: 0.151
  22. Citizen science, public policy. Science. 2018 07 13; 361(6398):134-136.
    View in: PubMed
    Score: 0.144
  23. Creating a data resource: what will it take to build a medical information commons? Genome Med. 2017 09 22; 9(1):84.
    View in: PubMed
    Score: 0.137
  24. Barriers to clinical adoption of next-generation sequencing: a policy Delphi panel's solutions. Per Med. 2017; 14(4):339-354.
    View in: PubMed
    Score: 0.134
  25. Myriad take two: Can genomic databases remain secret? Science. 2017 05 12; 356(6338):586-587.
    View in: PubMed
    Score: 0.133
  26. The ethics of conducting molecular autopsies in cases of sudden death in the young. Genome Res. 2016 09; 26(9):1165-9.
    View in: PubMed
    Score: 0.126
  27. Ethical and Legal Challenges Associated with Public Molecular Autopsies. J Law Med Ethics. 2016 06; 44(2):309-18.
    View in: PubMed
    Score: 0.125
  28. Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel. Appl Transl Genom. 2016 Sep; 10:19-24.
    View in: PubMed
    Score: 0.125
  29. Developing context-specific next-generation sequencing policy. Nat Biotechnol. 2016 05 06; 34(5):466-70.
    View in: PubMed
    Score: 0.124
  30. Persistent confusion and controversy surrounding gene patents. Nat Biotechnol. 2016 Feb; 34(2):145-7.
    View in: PubMed
    Score: 0.122
  31. Cultivating Administrative Support for a Clinical Ethics Consultation Service. J Clin Ethics. 2016; 27(4):341-351.
    View in: PubMed
    Score: 0.121
  32. Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections. Am J Public Health. 2016 Jan; 106(1):40-4.
    View in: PubMed
    Score: 0.120
  33. Taking DNA from the dead. Nat Rev Genet. 2010 May; 11(5):318.
    View in: PubMed
    Score: 0.081
  34. When families bridge the research-clinical divide: An exploration of values regarding cascade screening in genomic research. Genet Med Open. 2025; 3:103440.
    View in: PubMed
    Score: 0.058
  35. The ethics of lawyer-ethicists. J Law Med Ethics. 2005; 33(3):603-7.
    View in: PubMed
    Score: 0.057
  36. Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents. Genet Med. 2024 Aug; 26(8):101168.
    View in: PubMed
    Score: 0.054
  37. Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle". J Genet Couns. 2024 12; 33(6):1337-1350.
    View in: PubMed
    Score: 0.053
  38. Benefits of sharing neurophysiology data from the BRAIN Initiative Research Opportunities in Humans Consortium. Neuron. 2023 12 06; 111(23):3710-3715.
    View in: PubMed
    Score: 0.052
  39. Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research. J Adolesc Young Adult Oncol. 2023 10; 12(5):773-781.
    View in: PubMed
    Score: 0.049
  40. Neuroethics at 15: Keep the Kant but Add More Bacon. AJOB Neurosci. 2019 Jul-Sep; 10(3):97-100.
    View in: PubMed
    Score: 0.039
  41. What is a Medical Information Commons? J Law Med Ethics. 2019 03; 47(1):41-50.
    View in: PubMed
    Score: 0.038
  42. Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents. Patient Educ Couns. 2019 04; 102(4):680-686.
    View in: PubMed
    Score: 0.037
  43. Constraints on gene patent protection fuel secrecy concerns: a qualitative study. J Law Biosci. 2017 Dec; 4(3):542-564.
    View in: PubMed
    Score: 0.034
  44. Do privacy and security regulations need a status update? Perspectives from an intergenerational survey. PLoS One. 2017; 12(9):e0184525.
    View in: PubMed
    Score: 0.034
Connection Strength

The connection strength for concepts is the sum of the scores for each matching publication.

Publication scores are based on many factors, including how long ago they were written and whether the person is a first or senior author.