AMYMCGUIREAMY MCGUIRE29.71073630000000-95.39660450000000417MCGUIRE, AMYProfessorplugins:TwitterTwitterprns:awardConferredByaward conferred byprns:coAuthorOfcoauthor ofprns:endDateend dateFaculty Rankprns:fullNamefull nameprns:grantAwardedBygrant awarded byprns:hasAuthorListauthor listprns:hasFacultyRankhas faculty rankprns:hasNetworkhas networkprns:hasPublicationVenuepublished inprns:informationResourceReferenceinformation resource referenceprns:isPrimaryPositionis primary positionprns:latitudelatitudeprns:longitudelongitudeprns:mainImagephotoprns:maxWeightmaximum weightprns:medlineTAjournal title abbreviationprns:meshDescriptorUIMeSH DescriptorUIprns:meshSemanticGroupNameMeSH semantic group nameprns:minWeightminimum weightprns:numberOfAuthorsnumber of authorsprns:numberOfConnectionsnumber of connectionsprns:numberOfPublicationsnumber of publicationsprns:personIdPerson IDprns:personInPrimaryPositionperson in primary positionprns:physicalNeighborOfphysical neighborprns:pluginSearchableDataProfilesRNS Plugin Searchable Dataprns:positionInDepartmentposition in departmentprns:positionInDivisionposition in divisionprns:predicateNodepredicate nodeprns:principalInvestigatorNameprincipal investigator nameprns:publicationDatepublication dateprns:similarTosimilar toprns:sortOrdersort orderprns:startDatestart dateprns:uniquenessWeightuniqueness weightprns:yearyearAcademic ArticleArticleDocumentbibo:pmidPubMed IdentifierAddressvivo:address1address line 1vivo:addressCitycityvivo:addressPostalCodepostal codevivo:addressStatestate or provinceAgreementvivo:authorInAuthorshipselected publicationsvivo:authorRankauthor rank in publicationAuthorshipvivo:awardOrHonorawards and honorsAward or Honor ReceiptDepartmentDivisionGrantvivo:hasResearchArearesearch areasvivo:hasResearcherRoleresearch activitiesvivo:hrJobTitleHR job titleInformation Resourcevivo:linkAnchorTextlink anchor textvivo:linkedAuthorlinked authorvivo:linkedInformationResourcelinked information resourcevivo:mailingAddressmailing addressvivo:orcidIdORCID idvivo:personInPositionpositionsPositionvivo:positionInOrganizationposition in organizationvivo:preferredTitlepreferred titleResearcher Rolevivo:researcherRoleOfresearcher role ofRolevivo:roleContributesTocontributes tovivo:sponsorAwardIdsponsor award idURLLinkvivo:webpagewebpagerdf:predicatepredicaterdf:typetyperdfs:labellabelConceptAgentfoaf:firstNamefirst namefoaf:lastNamelast nameOrganizationPerson24625446Gray SW, Martins Y, Feuerman LZ, Bernhardt BA, Biesecker BB, Christensen KD, Joffe S, Rini C, Veenstra D, McGuire AL, CSER Consortium Outcomes and Measures Working GroupGenetics in medicine : official journal of the American College of Medical GeneticsSocial and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group. Genet Med. 2014 Oct; 16(10):727-35.Genet Med2014-03-13T00:00:002014Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.25387182Deverka PA, Kaufman D, McGuire ALJAMAOvercoming the reimbursement barriers for clinical sequencing. JAMA. 2014 Nov 12; 312(18):1857-8.JAMA2014-11-12T00:00:002014Overcoming the reimbursement barriers for clinical sequencing.Authorship 800711Authorship 8318611Authorship 888691Authorship 891682Authorship 932181025642274Vassy JL, Christensen KD, Slashinski MJ, Lautenbach DM, Raghavan S, Robinson JO, Blumenthal-Barby J, Feuerman LZ, Lehmann LS, Murray MF, Green RC, McGuire ALPersonalized medicine'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project. Per Med. 2015; 12(1):23-32.Per Med2015-01-01T00:00:002015'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project.25614766Blumenthal-Barby JS, McGuire AL, Green RC, Ubel PAGenome medicineHow behavioral economics can help to avoid 'The last mile problem' in whole genome sequencing. Genome Med. 2015; 7(1):3.Genome Med2015-01-22T00:00:002015How behavioral economics can help to avoid 'The last mile problem' in whole genome sequencing.Authorship 1585562Authorship 1125101Authorship 1217571Authorship 126682Authorship 210882Authorship 16064711Authorship 1607906Authorship 161634324819504Gill AC, Nelson EA, Mian AI, Raphael JL, Rowley DR, Mcguire ALMedical teacherResponding to moderate breaches in professionalism: an intervention for medical students. Med Teach. 2015 Feb; 37(2):136-9.Med Teach2014-05-12T00:00:002014Responding to moderate breaches in professionalism: an intervention for medical students.25612602Vassy JL, McLaughlin HM, McLaughlin HL, MacRae CA, Seidman CE, Lautenbach D, Krier JB, Lane WJ, Kohane IS, Murray MF, McGuire AL, Rehm HL, Green RCPublic health genomicsA one-page summary report of genome sequencing for the healthy adult. Public Health Genomics. 2015; 18(2):123-9.Public Health Genomics2015-01-21T00:00:002015A one-page summary report of genome sequencing for the healthy adult.25629736Green RC, Lautenbach D, McGuire ALThe New England journal of medicineGINA, genetic discrimination, and genomic medicine. N Engl J Med. 2015 Jan 29; 372(5):397-9.N Engl J Med2015-01-29T00:00:002015GINA, genetic discrimination, and genomic medicine.Authorship 328183Authorship 483161Authorship 495652Authorship 518921Authorship 549831Authorship 569232Authorship 6666212Authorship 669595Authorship 780337Authorship 975314CHRISTIGUERRINICHRISTI GUERRINI10780GUERRINI, CHRISTIAssociate Professor26822237Parsons DW, Roy A, Yang Y, Wang T, Scollon S, Bergstrom K, Kerstein RA, Gutierrez S, Petersen AK, Bavle A, Lin FY, L?pez-Terrada DH, Monzon FA, Hicks MJ, Eldin KW, Quintanilla NM, Adesina AM, Mohila CA, Whitehead W, Jea A, Vasudevan SA, Nuchtern JG, Ramamurthy U, McGuire AL, Hilsenbeck SG, Reid JG, Muzny DM, Wheeler DA, Berg SL, Chintagumpala MM, Eng CM, Gibbs RA, Plon SEJAMA oncologyDiagnostic Yield of Clinical Tumor and Germline Whole-Exome Sequencing for Children With Solid Tumors. JAMA Oncol. 2016 May 01; 2(5):616-624.JAMA Oncol2016-05-01T00:00:002016Diagnostic Yield of Clinical Tumor and Germline Whole-Exome Sequencing for Children With Solid Tumors.Authorship 29709911Authorship 2974493Authorship 2994484Authorship 3003163Authorship 3005963Authorship 302598326195989Gambin T, Jhangiani SN, Below JE, Campbell IM, Wiszniewski W, Muzny DM, Staples J, Morrison AC, Bainbridge MN, Penney S, McGuire AL, Gibbs RA, Lupski JR, Boerwinkle EGenome medicineSecondary findings and carrier test frequencies in a large multiethnic sample. Genome Med. 2015; 7(1):54.Genome Med2015-06-13T00:00:002015Secondary findings and carrier test frequencies in a large multiethnic sample.26287960Richards EG, Sangi-Haghpeykar H, McGuire AL, Van den Veyver IB, Fruhman GPrenatal diagnosisPregnant patients' risk perception of prenatal test results with uncertain fetal clinical significance: ultrasound versus advanced genetic testing. Prenat Diagn. 2015 Dec; 35(12):1213-7.Prenat Diagn2015-09-18T00:00:002015Pregnant patients' risk perception of prenatal test results with uncertain fetal clinical significance: ultrasound versus advanced genetic testing.26479562Scollon S, Bergstrom K, McCullough LB, McGuire AL, Gutierrez S, Kerstein R, Parsons DW, Plon SEThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsPediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject. J Law Med Ethics. 2015; 43(3):529-37.J Law Med Ethics2015-01-01T00:00:002015Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject.26505993McCullough LB, Slashinski MJ, McGuire AL, Street RL, Eng CM, Gibbs RA, Parsons DW, Plon SEPediatric blood & cancerIs Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid Tumors. Pediatr Blood Cancer. 2016 Mar; 63(3):511-5.Pediatr Blood Cancer2015-10-27T00:00:002015Is Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid Tumors.26562103Moore QL, Paul ME, McGuire AL, Majumder MAAmerican journal of public healthLegal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections. Am J Public Health. 2016 Jan; 106(1):40-4.Am J Public Health2015-11-12T00:00:002015Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.26729699Frankel LA, Pereira S, McGuire ALPediatricsPotential Psychosocial Risks of Sequencing Newborns. Pediatrics. 2016 Jan; 137 Suppl 1:S24-9.Pediatrics2016-01-01T00:00:002016Potential Psychosocial Risks of Sequencing Newborns.27019659Lupo PJ, Robinson JO, Diamond PM, Jamal L, Danysh HE, Blumenthal-Barby J, Lehmann LS, Vassy JL, Christensen KD, Green RC, McGuire AL, MedSeq Project teamPersonalized medicinePatients' perceived utility of whole-genome sequencing for their healthcare: findings from the MedSeq project. Per Med. 2016 Jan 01; 13(1):13-20.Per Med2016-01-01T00:00:002016Patients' perceived utility of whole-genome sequencing for their healthcare: findings from the MedSeq project.27181682Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH, CSER ConsortiumAmerican journal of human geneticsClinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 06 02; 98(6):1051-1066.Am J Hum Genet2016-05-12T00:00:002016Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.74Professor10Assistant Professor14Associate Professor42Director46Distinguished Emeritus Professor6Adjunct Professor16036642McGuire AL, McCullough LBThe American journal of bioethics : AJOBRespect as an organizing normative category for research ethics. Am J Bioeth. 2005; 5(1):W1-2.Am J Bioeth2005-01-01T00:00:002005Respect as an organizing normative category for research ethics.27412853McGuire AL, Moore Q, Majumder M, Walkiewicz M, Eng CM, Belmont JW, Nassef S, Darilek S, Rutherford K, Pereira S, Scherer SE, Sutton VR, Wolf D, Gibbs RA, Kahn R, Sanchez LA, Molecular Autopsy Consortium of Houston (MATCH)Genome researchThe ethics of conducting molecular autopsies in cases of sudden death in the young. Genome Res. 2016 09; 26(9):1165-9.Genome Res2016-07-13T00:00:002016The ethics of conducting molecular autopsies in cases of sudden death in the young.Authorship 3210479Authorship 32116425Authorship 3219945Authorship 32206639Authorship 3224023Authorship 32249910Authorship 32290424Authorship 323674426849516Guerrini CJ, Majumder MA, McGuire ALNature biotechnologyPersistent confusion and controversy surrounding gene patents. Nat Biotechnol. 2016 Feb; 34(2):145-7.Nat Biotechnol2016-02-01T00:00:002016Persistent confusion and controversy surrounding gene patents.26882539Becnel LB, Pereira S, Drummond JA, Gingras MC, Covington KR, Kovar CL, Doddapaneni HV, Hu J, Muzny D, McGuire AL, Wheeler DA, Gibbs RAScientific dataAn open access pilot freely sharing cancer genomic data from participants in Texas. Sci Data. 2016 Feb 16; 3:160010.Sci Data2016-02-16T00:00:002016An open access pilot freely sharing cancer genomic data from participants in Texas.26928896Robinson JO, Carroll TM, Feuerman LZ, Perry DL, Hoffman-Andrews L, Walsh RC, Christensen KD, Green RC, McGuire AL, MedSeq Project TeamJournal of empirical research on human research ethics : JERHREParticipants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing. J Empir Res Hum Res Ethics. 2016 02; 11(1):21-30.J Empir Res Hum Res Ethics2016-02-28T00:00:002016Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing.26963550Acharya A, Bingham K, Bradner J, Burke W, Charo RA, Cherry J, Choulika A, Coles T, Cook-Deegan R, Crooke ST, Crook ST, D?az E, Erickson B, Giddings LV, Giwa SE, Greenwood JC, Gulati V, Hall S, Harris J, Heywood J, Hill C, Levin J, Mangubat A, Maraganore J, Mariggi G, Mazur BJ, McGuire AL, Moll N, Moreno J, Naughton G, Nelsen L, Osbourn J, Perez D, Reed J, Schmidt E, Seyfert-Margolis V, Stoffels P, Thorball J, O'Toole T, Vainu I, van Deventer S, Zerhouni E, Zohar DNature biotechnologyCommunity crystal gazing. Nat Biotechnol. 2016 Mar; 34(3):276-83.Nat Biotechnol2016-03-01T00:00:002016Community crystal gazing.27153269Curnutte MA, Frumovitz KL, Bollinger JM, Cook-Deegan RM, McGuire AL, Majumder MANature biotechnologyDeveloping context-specific next-generation sequencing policy. Nat Biotechnol. 2016 05 06; 34(5):466-70.Nat Biotechnol2016-05-06T00:00:002016Developing context-specific next-generation sequencing policy.27281427Acharya A, Bingham K, Bradner J, Burke W, Charo RA, Cherry J, Choulika A, Coles T, Cook-Deegan R, Crook ST, D?az E, Erickson B, Giddings LV, Giwa SE, Greenwood JC, Gulati V, Hall S, Harris J, Heywood J, Hill C, Levin J, Mangubat A, Maraganore J, Mariggi G, Mazur BJ, McGuire AL, Moll N, Moreno J, Naughton G, Nelsen L, Osbourn J, Perez D, Reed J, Schmidt E, Seyfert-Margolis V, Stoffels P, Thorball J, O'Toole T, Vainu I, van Deventer S, Zerhouni E, Zohar DNature biotechnologyErratum: Community crystal gazing. Nat Biotechnol. 2016 06 09; 34(6):666.Nat Biotechnol2016-06-09T00:00:002016Erratum: Community crystal gazing.27338606Moore QL, Majumder MA, Rutherford LK, McGuire ALThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsEthical and Legal Challenges Associated with Public Molecular Autopsies. J Law Med Ethics. 2016 06; 44(2):309-18.J Law Med Ethics2016-06-01T00:00:002016Ethical and Legal Challenges Associated with Public Molecular Autopsies.16627725McGuire AL, Gibbs RAScience (New York, N.Y.)Genetics. No longer de-identified. Science. 2006 Apr 21; 312(5772):370-1.Science2006-04-21T00:00:002006Genetics. No longer de-identified.Authorship 3262711Authorship 3277141227668172Messner DA, Al Naber J, Koay P, Cook-Deegan R, Majumder M, Javitt G, Deverka P, Dvoskin R, Bollinger J, Curnutte M, Chandrasekharan S, McGuire AApplied & translational genomicsBarriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel. Appl Transl Genom. 2016 Sep; 10:19-24.Appl Transl Genom2016-05-25T00:00:002016Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel.12762909McGuire AThe American journal of bioethics : AJOBClearing the mist. Am J Bioeth. 2002; 2(4):W7.Am J Bioeth2002-01-01T00:00:002002Clearing the mist.17885116McGuire AL, Cho MK, McGuire SE, Caulfield TScience (New York, N.Y.)Medicine. The future of personal genomics. Science. 2007 Sep 21; 317(5845):1687.Science2007-09-21T00:00:002007Medicine. The future of personal genomics.18421352Wheeler DA, Srinivasan M, Egholm M, Shen Y, Chen L, McGuire A, He W, Chen YJ, Makhijani V, Roth GT, Gomes X, Tartaro K, Niazi F, Turcotte CL, Irzyk GP, Lupski JR, Chinault C, Song XZ, Liu Y, Yuan Y, Nazareth L, Qin X, Muzny DM, Margulies M, Weinstock GM, Gibbs RA, Rothberg JMNatureThe complete genome of an individual by massively parallel DNA sequencing. Nature. 2008 Apr 17; 452(7189):872-6.Nature2008-04-17T00:00:002008The complete genome of an individual by massively parallel DNA sequencing.18971311McGuire AL, Colgrove J, Whitney SN, Diaz CM, Bustillos D, Versalovic JGenome researchEthical, legal, and social considerations in conducting the Human Microbiome Project. Genome Res. 2008 Dec; 18(12):1861-4.Genome Res2008-10-29T00:00:002008Ethical, legal, and social considerations in conducting the Human Microbiome Project.19074356Bruce CR, Berg SL, McGuire ALClinical pediatricsPlease don't call my mom: pediatric consent and confidentiality. Clin Pediatr (Phila). 2009 Apr; 48(3):243-6.Clin Pediatr (Phila)2008-12-11T00:00:002008Please don't call my mom: pediatric consent and confidentiality.One Baylor PlazaHouston, 77030TX20065954Guttmacher AE, McGuire AL, Ponder B, Stef?nsson KNature reviews. GeneticsPersonalized genomic information: preparing for the future of genetic medicine. Nat Rev Genet. 2010 02; 11(2):161-5.Nat Rev Genet2010-01-12T00:00:002010Personalized genomic information: preparing for the future of genetic medicine.20332774McGuire AL, Majumder MA, Halpern SD, Swindell JS, Yaeger LV, Gibbs RA, Wheeler TMNature reviews. GeneticsTaking DNA from the dead. Nat Rev Genet. 2010 May; 11(5):318.Nat Rev Genet2010-03-23T00:00:002010Taking DNA from the dead.20975549Rey MM, Ware LB, Matthay MA, Bernard GR, McGuire AL, Caplan AL, Halpern SDCritical care medicineInformed consent in research to improve the number and quality of deceased donor organs. Crit Care Med. 2011 Feb; 39(2):280-3.Crit Care Med2011-02-01T00:00:002011Informed consent in research to improve the number and quality of deceased donor organs.Authorship 328005327329739Pereira S, Oliver Robinson J, McGuire ALEuropean journal of human genetics : EJHGReturn of individual genomic research results: what do consent forms tell participants? Eur J Hum Genet. 2016 11; 24(11):1524-1529.Eur J Hum Genet2016-06-22T00:00:002016Return of individual genomic research results: what do consent forms tell participants?Authorship 374867121785360McGuire AL, Oliver JM, Slashinski MJ, Graves JL, Wang T, Kelly PA, Fisher W, Lau CC, Goss J, Okcu M, Treadwell-Deering D, Goldman AM, Noebels JL, Hilsenbeck SGGenetics in medicine : official journal of the American College of Medical GeneticsTo share or not to share: a randomized trial of consent for data sharing in genome research. Genet Med. 2011 Nov; 13(11):948-55.Genet Med2011-11-01T00:00:002011To share or not to share: a randomized trial of consent for data sharing in genome research.15838411McGuire AL, McCullough LB, Weller SC, Whitney SNMedical careMissed expectations? Physicians' views of patients' participation in medical decision-making. Med Care. 2005 May; 43(5):466-70.Med Care2005-05-01T00:00:002005Missed expectations? Physicians' views of patients' participation in medical decision-making.Authorship 3979851122147367Cassa CA, Savage SK, Taylor PL, Green RC, McGuire AL, Mandl KDGenome researchDisclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility. Genome Res. 2012 Mar; 22(3):421-8.Genome Res2012-01-06T00:00:002012Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.17199822McGuire AL, Gibbs RAThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsMeeting the growing demands of genetic research. J Law Med Ethics. 2006; 34(4):809-12.J Law Med Ethics2006-01-01T00:00:002006Meeting the growing demands of genetic research.23110633Slashinski MJ, McCurdy SA, Achenbaum LS, Whitney SN, McGuire ALBMC medical ethics"Snake-oil," "quack medicine," and "industrially cultured organisms:" biovalue and the commercialization of human microbiome research. BMC Med Ethics. 2012 Oct 30; 13:28.BMC Med Ethics2012-10-30T00:00:002012"Snake-oil," "quack medicine," and "industrially cultured organisms:" biovalue and the commercialization of human microbiome research.23386185Bledsoe MJ, Clayton EW, McGuire AL, Grizzle WE, O'Rourke PP, Zeps NGenetics in medicine : official journal of the American College of Medical GeneticsReturn of research results from genomic biobanks: a call for data. Genet Med. 2013 Feb; 15(2):159-60.Genet Med2013-02-01T00:00:002013Return of research results from genomic biobanks: a call for data.18087293McGuire AL, Caulfield T, Cho MKNature reviews. GeneticsResearch ethics and the challenge of whole-genome sequencing. Nat Rev Genet. 2008 02; 9(2):152-6.Nat Rev Genet2008-02-01T00:00:002008Research ethics and the challenge of whole-genome sequencing.18392146Whitney SN, Alcser K, Schneider C, McCullough LB, McGuire AL, Volk RJInternational journal of medical sciencesPrincipal investigator views of the IRB system. Int J Med Sci. 2008 Apr 02; 5(2):68-72.Int J Med Sci2008-04-02T00:00:002008Principal investigator views of the IRB system.18098025McCullough LB, McGuire AL, Whitney SNThe American journal of bioethics : AJOBConsent: informed, simple, implied and presumed. Am J Bioeth. 2007 Dec; 7(12):49-50; discussion W3-4.Am J Bioeth2007-12-01T00:00:002007Consent: informed, simple, implied and presumed.18556639Whitney SN, Holmes-Rovner M, Brody H, Schneider C, McCullough LB, Volk RJ, McGuire ALMedical decision making : an international journal of the Society for Medical Decision MakingBeyond shared decision making: an expanded typology of medical decisions. Med Decis Making. 2008 Sep-Oct; 28(5):699-705.Med Decis Making2008-06-12T00:00:002008Beyond shared decision making: an expanded typology of medical decisions.18366258Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, Meslin EM, Murphy J, Nussbaum RL, Otlowski M, Pullman D, Ray PN, Sugarman J, Timmons MPLoS biologyResearch ethics recommendations for whole-genome research: consensus statement. PLoS Biol. 2008 Mar 25; 6(3):e73.PLoS Biol2008-03-25T00:00:002008Research ethics recommendations for whole-genome research: consensus statement.18484591Whitney SN, McCullough LB, Frug? E, McGuire AL, Volk RJCancerBeyond breaking bad news: the roles of hope and hopefulness. Cancer. 2008 Jul 15; 113(2):442-5.Cancer2008-07-15T00:00:002008Beyond breaking bad news: the roles of hope and hopefulness.18974262McGuire SE, McGuire ALGenome researchDon't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies. Genome Res. 2008 Nov; 18(11):1683-5.Genome Res2008-11-01T00:00:002008Don't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies.19439060Belmont J, McGuire ALGenome medicineThe futility of genomic counseling: essential role of electronic health records. Genome Med. 2009 May 08; 1(5):48.Genome Med2009-05-08T00:00:002009The futility of genomic counseling: essential role of electronic health records.19493081Marietta C, McGuire ALThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsCurrents in contemporary ethics. Direct-to-consumer genetic testing: is it the practice of medicine? J Law Med Ethics. 2009; 37(2):369-74.J Law Med Ethics2009-01-01T00:00:002009Currents in contemporary ethics. Direct-to-consumer genetic testing: is it the practice of medicine?Authorship 6515601Authorship 6517432Authorship 6526345Authorship 6527403Authorship 6533615Authorship 65369424Authorship 6545063Authorship 654534820098629Fackler JL, McGuire ALCurrent pharmacogenomics and personalized medicinePaving the Way to Personalized Genomic Medicine: Steps to Successful Implementation. Curr Pharmacogenomics Person Med. 2009 Jun 01; 7(2):125.Curr Pharmacogenomics Person Med2009-06-01T00:00:002009Paving the Way to Personalized Genomic Medicine: Steps to Successful Implementation.27774215Caulfield T, Borry P, Toews M, Elger BS, Greely HT, McGuire AJournal of law and the biosciencesMarginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion. J Law Biosci. 2015 Nov; 2(3):627-644.J Law Biosci2015-11-16T00:00:002015Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion.27806054Majumder MA, Cook-Deegan R, McGuire ALPLoS biologyBeyond Our Borders? Public Resistance to Global Genomic Data Sharing. PLoS Biol. 2016 Nov; 14(11):e2000206.PLoS Biol2016-11-02T00:00:002016Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.28001140Bruce CR, Majumder MA, Stephens A, Malek J, McGuire AThe Journal of clinical ethicsCultivating Administrative Support for a Clinical Ethics Consultation Service. J Clin Ethics. 2016; 27(4):341-351.J Clin Ethics2016-01-01T00:00:002016Cultivating Administrative Support for a Clinical Ethics Consultation Service.28072771Roberts JL, Pereira S, McGuire ALNature biotechnologyShould you profit from your genome? Nat Biotechnol. 2017 01 10; 35(1):18-20.Nat Biotechnol2017-01-10T00:00:002017Should you profit from your genome?28079900Ceyhan-Birsoy O, Machini K, Lebo MS, Yu TW, Agrawal PB, Parad RB, Holm IA, McGuire A, Green RC, Beggs AH, Rehm HLGenetics in medicine : official journal of the American College of Medical GeneticsA curated gene list for reporting results of newborn genomic sequencing. Genet Med. 2017 07; 19(7):809-818.Genet Med2017-01-12T00:00:002017A curated gene list for reporting results of newborn genomic sequencing.28096516Berg JS, Agrawal PB, Bailey DB, Beggs AH, Brenner SE, Brower AM, Cakici JA, Ceyhan-Birsoy O, Chan K, Chen F, Currier RJ, Dukhovny D, Green RC, Harris-Wai J, Holm IA, Iglesias B, Joseph G, Kingsmore SF, Koenig BA, Kwok PY, Lantos J, Leeder SJ, Lewis MA, McGuire AL, Milko LV, Mooney SD, Parad RB, Pereira S, Petrikin J, Powell BC, Powell CM, Puck JM, Rehm HL, Risch N, Roche M, Shieh JT, Veeraraghavan N, Watson MS, Willig L, Yu TW, Urv T, Wise ALPediatricsNewborn Sequencing in Genomic Medicine and Public Health. Pediatrics. 2017 Feb; 139(2).Pediatrics2017-01-17T00:00:002017Newborn Sequencing in Genomic Medicine and Public Health.20041040McGuire ALPersonalized medicine1000 Genomes on the Road to Personalized Medicine. Per Med. 2008; 5(3):195-197.Per Med2008-01-01T00:00:0020081000 Genomes on the Road to Personalized Medicine.19998099McGuire AL, Diaz CM, Wang T, Hilsenbeck SGThe American journal of bioethics : AJOBSocial networkers' attitudes toward direct-to-consumer personal genome testing. Am J Bioeth. 2009; 9(6-7):3-10.Am J Bioeth2009-01-01T00:00:002009Social networkers' attitudes toward direct-to-consumer personal genome testing.20458111Swindell JS, McGuire AL, Halpern SDAnnals of family medicineBeneficent persuasion: techniques and ethical guidelines to improve patients' decisions. Ann Fam Med. 2010 May-Jun; 8(3):260-4.Ann Fam Med2010-05-01T00:00:002010Beneficent persuasion: techniques and ethical guidelines to improve patients' decisions.20236478Nelson EA, McGuire ALGenome medicineThe need for medical education reform: genomics and the changing nature of health information. 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JAMA. 2013 Apr 10; 309(14):1465-6.JAMA2013-04-10T00:00:002013The indispensable role of professional judgment in genomic medicine.true1Assistant ProfessorAssistant Professortrue1ProfessorProfessortrue1Associate ProfessorAssociate ProfessorAuthorship 102321529749861Gutierrez AM, Robinson JO, Statham EE, Scollon S, Bergstrom KL, Slashinski MJ, Parsons DW, Plon SE, McGuire AL, Street RLPersonalized medicinePortero versus portador: Spanish interpretation of genomic terminology during whole exome sequencing results disclosure. 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Genet Med. 2019 03; 21(3):622-630.Genet Med2018-09-13T00:00:002018Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project.30278047Guerrini CJ, Robinson JO, Petersen D, McGuire ALPLoS biologyShould police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique. PLoS Biol. 2018 10; 16(10):e2006906.PLoS Biol2018-10-02T00:00:002018Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique.29986673Holm IA, Agrawal PB, Ceyhan-Birsoy O, Christensen KD, Fayer S, Frankel LA, Genetti CA, Krier JB, LaMay RC, Levy HL, McGuire AL, Parad RB, Park PJ, Pereira S, Rehm HL, Schwartz TS, Waisbren SE, Yu TW, BabySeq Project Team, Green RC, Beggs AHBMC pediatricsThe BabySeq project: implementing genomic sequencing in newborns. BMC Pediatr. 2018 07 09; 18(1):225.BMC Pediatr2018-07-09T00:00:002018The BabySeq project: implementing genomic sequencing in newborns.30193136Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hassmiller-Lich K, Joseph G, Kenny EE, Koenig BA, Knight S, Kwok PY, Lewis KL, McGuire AL, Norton ME, Ou J, Parsons DW, Powell BC, Risch N, Robinson M, Rini C, Scollon S, Slavotinek AM, Veenstra DL, Wasserstein MP, Wilfond BS, Hindorff LA, CSER consortium, Plon SE, Jarvik GPAmerican journal of human geneticsThe Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations. Am J Hum Genet. 2018 09 06; 103(3):319-327.Am J Hum Genet2018-09-06T00:00:002018The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.29880677Ram N, Guerrini CJ, McGuire ALScience (New York, N.Y.)Genealogy databases and the future of criminal investigation. Science. 2018 06 08; 360(6393):1078-1079.Science2018-06-08T00:00:002018Genealogy databases and the future of criminal investigation.30287922Hart MR, Biesecker BB, Blout CL, Christensen KD, Amendola LM, Bergstrom KL, Biswas S, Bowling KM, Brothers KB, Conlin LK, Cooper GM, Dulik MC, East KM, Everett JN, Finnila CR, Ghazani AA, Gilmore MJ, Goddard KAB, Jarvik GP, Johnston JJ, Kauffman TL, Kelley WV, Krier JB, Lewis KL, McGuire AL, McMullen C, Ou J, Plon SE, Rehm HL, Richards CS, Romasko EJ, Miren Sagardia A, Spinner NB, Thompson ML, Turbitt E, Vassy JL, Wilfond BS, Veenstra DL, Berg JS, Green RC, Biesecker LG, Hindorff LAGenetics in medicine : official journal of the American College of Medical GeneticsSecondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study. Genet Med. 2019 05; 21(5):1100-1110.Genet Med2018-10-05T00:00:002018Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study.30600265Pereira S, Robinson JO, Gutierrez AM, Petersen DK, Hsu RL, Lee CH, Schwartz TS, Holm IA, Beggs AH, Green RC, McGuire AL, BabySeq Project GroupPediatricsPerceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project. Pediatrics. 2019 01; 143(Suppl 1):S6-S13.Pediatrics2019-01-01T00:00:002019Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project.30600268VanNoy GE, Genetti CA, McGuire AL, Green RC, Beggs AH, Holm IA, BabySeq Project GroupPediatricsChallenging the Current Recommendations for Carrier Testing in Children. Pediatrics. 2019 01; 143(Suppl 1):S27-S32.Pediatrics2019-01-01T00:00:002019Challenging the Current Recommendations for Carrier Testing in Children.30600270Holm IA, McGuire A, Pereira S, Rehm H, Green RC, Beggs AH, BabySeq Project TeamPediatricsReturning a Genomic Result for an Adult-Onset Condition to the Parents of a Newborn: Insights From the BabySeq Project. Pediatrics. 2019 01; 143(Suppl 1):S37-S43.Pediatrics2019-01-01T00:00:002019Returning a Genomic Result for an Adult-Onset Condition to the Parents of a Newborn: Insights From the BabySeq Project.30670880Hart MR, Biesecker BB, Blout CL, Christensen KD, Amendola LM, Bergstrom KL, Biswas S, Bowling KM, Brothers KB, Conlin LK, Cooper GM, Dulik MC, East KM, Everett JN, Finnila CR, Ghazani AA, Gilmore MJ, Goddard KAB, Jarvik GP, Johnston JJ, Kauffman TL, Kelley WV, Krier JB, Lewis KL, McGuire AL, McMullen C, Ou J, Plon SE, Rehm HL, Richards CS, Romasko EJ, Sagardia AM, Spinner NB, Thompson ML, Turbitt E, Vassy JL, Wilfond BS, Veenstra DL, Berg JS, Green RC, Biesecker LG, Hindorff LAGenetics in medicine : official journal of the American College of Medical GeneticsCorrection: Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study. Genet Med. 2019 May; 21(5):1261-1262.Genet Med2019-05-01T00:00:002019Correction: Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study.30482469Scollon S, Majumder MA, Bergstrom K, Wang T, McGuire AL, Robinson JO, Gutierrez AM, Lee CH, Hilsenbeck SG, Plon SE, Parsons DW, Street RLPatient education and counselingExome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents. Patient Educ Couns. 2019 04; 102(4):680-686.Patient Educ Couns2018-11-12T00:00:002018Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents.30571578Pierpont ME, Brueckner M, Chung WK, Garg V, Lacro RV, McGuire AL, Mital S, Priest JR, Pu WT, Roberts A, Ware SM, Gelb BD, Russell MW, American Heart Association Council on Cardiovascular Disease in the Young; Council on CardiovascularCirculationGenetic Basis for Congenital Heart Disease: Revisited: A Scientific Statement From the American Heart Association. Circulation. 2018 11 20; 138(21):e653-e711.Circulation2018-11-20T00:00:002018Genetic Basis for Congenital Heart Disease: Revisited: A Scientific Statement From the American Heart Association.30581014Gutierrez AM, Statham EE, Robinson JO, Slashinski MJ, Scollon S, Bergstrom KL, Street RL, Parsons DW, Plon SE, McGuire ALPatient education and counselingAgents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families. Patient Educ Couns. 2019 05; 102(5):895-901.Patient Educ Couns2018-12-10T00:00:002018Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families.30609409Ceyhan-Birsoy O, Murry JB, Machini K, Lebo MS, Yu TW, Fayer S, Genetti CA, Schwartz TS, Agrawal PB, Parad RB, Holm IA, McGuire AL, Green RC, Rehm HL, Beggs AH, BabySeq Project TeamAmerican journal of human geneticsInterpretation of Genomic Sequencing Results in Healthy and Ill Newborns: Results from the BabySeq Project. Am J Hum Genet. 2019 01 03; 104(1):76-93.Am J Hum Genet2019-01-03T00:00:002019Interpretation of Genomic Sequencing Results in Healthy and Ill Newborns: Results from the BabySeq Project.2011-07-31NIHMCGUIRE, AMY LYNN2007-08-02The ethics of consent for the public release of potentially identifiable DNA dataR01HG0043332021-08-31NIHLAZARO-MUNOZ, GABRIEL2017-09-15Neuroethics of aDBS Systems Targeting Neuropsychiatric and Movement DisordersR01MH1148542022-05-31NIHPLON, SHARON E.2011-12-05Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of Texas: The KidsCanSeq StudyU01HG0064852021-06-30NIHMCGUIRE, AMY LYNN2015-09-14Building the Medical Information Commons: Participant Engagement and PolicyR01HG0089182016-07-31NIHMCGUIRE, AMY LYNN2012-08-01Clinical Integration of Whole Genome Sequencing: A Policy AnalysisR01HG0064602013-06-30NIHMCGUIRE, AMY LYNN2009-07-10Ethical Legal and Social Dimensions of Human Microbiome ResearchR01HG004853Principal InvestigatorCo-Principal InvestigatorPrincipal InvestigatorPrincipal InvestigatorPrincipal InvestigatorCo-Principal InvestigatorDepartment of MedicineDepartment of PediatricsCenter for Medical Ethics and Health PolicyDepartment of Molecular & Human GeneticsCtr for Med Ethics & Health PolicyMedicine-Athero & LipoproteinsMedicine-General MedicineMedicine-GeriatricsMedicine-NephrologyMolecular & Human GeneticsPediatrics-OncologyBaylor College of MedicineDAVIDBATESDAVID BATES29.71073630000000-95.396604500000001204BATES, DAVIDAssociate ProfessorJENNIFERBLUMENTHAL-BARBYJENNIFER BLUMENTHAL-BARBY29.71073630000000-95.396604500000001418BLUMENTHAL-BARBY, JENNIFERProfessorURSULABRAUNURSULA BRAUN29.71073630000000-95.396604500000002101BRAUN, URSULAAssociate ProfessorERICBOERWINKLEERIC BOERWINKLE0.000000000000000.000000000000002653BOERWINKLE, ERICAdjunct ProfessorJAMESLUPSKIJAMES LUPSKI29.71073630000000-95.396604500000003140LUPSKI, JAMESProfessorMARYMAJUMDERMARY MAJUMDER29.71073630000000-95.39660450000000715MAJUMDER, MARYProfessorAuthorship 942654930808425Zoltick ES, Linderman MD, McGinniss MA, Ramos E, Ball MP, Church GM, Leonard DGB, Pereira S, McGuire AL, Caskey CT, Sanderson SC, Schadt EE, Nielsen DE, Crawford SD, Green RC, PeopleSeq ConsortiumGenome medicinePredispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium. Genome Med. 2019 02 27; 11(1):10.Genome Med2019-02-27T00:00:002019Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium.RICHARDGIBBSRICHARD GIBBS0.000000000000000.000000000000003131GIBBS, RICHARDDistinguished Service ProfessorLAURENCEMCCULLOUGHLAURENCE MCCULLOUGH29.71073630000000-95.396604500000003238MCCULLOUGH, LAURENCEDistinguished Emeritus ProfessorSHARONPLONSHARON PLON0.000000000000000.000000000000003410PLON, SHARON0000-0002-9626-0936Professor7.029120.00860774502research areas12.45480.0207036100coauthor of210.28525.143960similar to11238selected publicationsQINGTIANLIQINGTIAN LI29.71073630000000-95.39660450000000515LI, QINGTIANAssistant ProfessorAuthorship 9440991130442797Botkin JR, Appelbaum PS, Bakken S, Brown C, Burke W, Fabsitz R, Gamble VN, Gonsalves G, Kost R, Leonard DGB, McGuire A, Nichols JH, Patrick-Lake B, Wilkins CH, Zikmund-Fisher BJScience (New York, N.Y.)Standardizing return of participant results. Science. 2018 11 16; 362(6416):759-760.Science2018-11-15T00:00:002018Standardizing return of participant results.2024-03-31NIHCOOK-DEEGAN, ROBERT MULLAN ;MCGUIRE, AMY L2019-04-01The Sulston Project: making the knowledge commons for interpreting cancer genomic variants more effectiveR01CA237118Co-Principal InvestigatorAuthorship 9451526Authorship 94521210Authorship 9452861Authorship 9453463Authorship 9453484Authorship 9454001Authorship 945452730994058Cook-Deegan R, Majumder MA, McGuire ALThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsIntroduction: Sharing Data in a Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):7-11.J Law Med Ethics2019-03-01T00:00:002019Introduction: Sharing Data in a Medical Information Commons.30994063Villanueva AG, Cook-Deegan R, Robinson JO, McGuire AL, Majumder MAThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsGenomic Data-Sharing Practices. J Law Med Ethics. 2019 03; 47(1):31-40.J Law Med Ethics2019-03-01T00:00:002019Genomic Data-Sharing Practices.30994065Bollinger JM, Zuk PD, Majumder MA, Versalovic E, Villanueva AG, Hsu RL, McGuire AL, Cook-Deegan RThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsWhat is a Medical Information Commons? J Law Med Ethics. 2019 03; 47(1):41-50.J Law Med Ethics2019-03-01T00:00:002019What is a Medical Information Commons?30994067McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, Koenig BA, Lambright JM, Mattison JE, O'Donnell C, Rai AK, Rodriguez LL, Simoncelli T, Terry SF, Thorogood AM, Watson MS, Wilbanks JT, Cook-Deegan RThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsImportance of Participant-Centricity and Trust for a Sustainable Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):12-20.J Law Med Ethics2019-03-01T00:00:002019Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.30994069Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MAThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsCharacterizing the Biomedical Data-Sharing Landscape. J Law Med Ethics. 2019 03; 47(1):21-30.J Law Med Ethics2019-03-01T00:00:002019Characterizing the Biomedical Data-Sharing Landscape.30994071Deverka PA, Gilmore D, Richmond J, Smith Z, Mangrum R, Koenig BA, Cook-Deegan R, Villanueva AG, Majumder MA, McGuire ALThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsHopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):70-87.J Law Med Ethics2019-03-01T00:00:002019Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.30994077McGuire AL, Roberts J, Aas S, Evans BJThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsWho Owns the Data in a Medical Information Commons? J Law Med Ethics. 2019 03; 47(1):62-69.J Law Med Ethics2019-03-01T00:00:002019Who Owns the Data in a Medical Information Commons?Authorship 945528231011471Zuk P, McGuire AL, L?zaro-Mu?oz GAJOB neuroscienceAlienation, Quality of Life, and DBS for Depression. AJOB Neurosci. 2018; 9(4):223-225.AJOB Neurosci2019-02-25T00:00:002019Alienation, Quality of Life, and DBS for Depression.Authorship 1274257Authorship 1286095Authorship 1289972Authorship 129206223788249Green RC, Berg JS, Grody WW, Kalia SS, Korf BR, Martin CL, McGuire AL, Nussbaum RL, O'Daniel JM, Ormond KE, Rehm HL, Watson MS, Williams MS, Biesecker LG, American College of Medical Genetics and GenomicsGenetics in medicine : official journal of the American College of Medical GeneticsACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing. Genet Med. 2013 Jul; 15(7):565-74.Genet Med2013-06-20T00:00:002013ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.23926222Caulfield T, McGuire ALG3 (Bethesda, Md.)Policy uncertainty, sequencing, and cell lines. G3 (Bethesda). 2013 Aug 07; 3(8):1205-7.G3 (Bethesda)2013-08-07T00:00:002013Policy uncertainty, sequencing, and cell lines.24082139Gonzalez-Garay ML, McGuire AL, Pereira S, Caskey CTProceedings of the National Academy of Sciences of the United States of AmericaPersonalized genomic disease risk of volunteers. Proc Natl Acad Sci U S A. 2013 Oct 15; 110(42):16957-62.Proc Natl Acad Sci U S A2013-09-30T00:00:002013Personalized genomic disease risk of volunteers.24169421Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire ALJournal of empirical research on human research ethics : JERHREParticipants' recall and understanding of genomic research and large-scale data sharing. J Empir Res Hum Res Ethics. 2013 Oct; 8(4):42-52.J Empir Res Hum Res Ethics2013-10-01T00:00:002013Participants' recall and understanding of genomic research and large-scale data sharing.Authorship 1102861Authorship 94765222Authorship 94821110Authorship 9482431831104772Horowitz CR, Orlando LA, Slavotinek AM, Peterson J, Angelo F, Biesecker B, Bonham VL, Cameron LD, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hindorff LA, Jarvik GP, Kaufman D, Kenny EE, Knight SJ, Koenig BA, Korf BR, Madden E, McGuire AL, Ou J, Wasserstein MP, Robinson M, Leventhal H, Sanderson SCAmerican journal of human geneticsThe Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research. Am J Hum Genet. 2019 06 06; 104(6):1088-1096.Am J Hum Genet2019-05-16T00:00:002019The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research.31160753Burke W, Clayton EW, Wolf SM, Berry SA, Evans BJ, Evans JP, Hall R, Korngiebel D, Laberge AM, LeRoy BS, McGuire ALGenetics in medicine : official journal of the American College of Medical GeneticsImproving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines. Genet Med. 2019 11; 21(11):2431-2438.Genet Med2019-06-04T00:00:002019Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines.31160819Adashi EY, Caplan AL, Capron A, Chapman AR, Cho M, Clayton EW, Cohen IG, Cook-Deegan R, Faden RR, Friedmann T, Gostin LO, Greely HT, Johnston J, Juengst E, King PA, Knowles LP, Lyerly AD, McGuire AL, Moreno JD, Rothenberg K, Truog RD, Walters LNature medicineIn support of mitochondrial replacement therapy. Nat Med. 2019 06; 25(6):870-871.Nat Med2019-06-01T00:00:002019In support of mitochondrial replacement therapy.Authorship 9489808Authorship 9490191031186522Malek J, Pereira S, Robinson JO, Gutierrez AM, Slashinski MJ, Parsons DW, Plon SE, McGuire ALGenetics in medicine : official journal of the American College of Medical GeneticsResponsibility, culpability, and parental views on genomic testing for seriously ill children. Genet Med. 2019 12; 21(12):2791-2797.Genet Med2019-06-12T00:00:002019Responsibility, culpability, and parental views on genomic testing for seriously ill children.31189963Robinson JO, Wynn J, Biesecker B, Biesecker LG, Bernhardt B, Brothers KB, Chung WK, Christensen KD, Green RC, McGuire AL, Hart MR, Griesemer I, Patrick DL, Rini C, Veenstra D, Cronin AM, Gray SWGenetics in medicine : official journal of the American College of Medical GeneticsPsychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies. Genet Med. 2019 12; 21(12):2781-2790.Genet Med2019-06-13T00:00:002019Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies.Authorship 95240610Authorship 952508331329079L?zaro-Mu?oz G, Zuk P, Pereira S, Kostick K, Torgerson L, Sierra-Mercado D, Majumder M, Blumenthal-Barby J, Storch EA, Goodman WK, McGuire ALAJOB neuroscienceNeuroethics at 15: Keep the Kant but Add More Bacon. AJOB Neurosci. 2019 Jul-Sep; 10(3):97-100.AJOB Neurosci2019-07-01T00:00:002019Neuroethics at 15: Keep the Kant but Add More Bacon.31337889Guerrini CJ, Botkin JR, McGuire ALNature biotechnologyClarify the HIPAA right of access to individuals' research data. Nat Biotechnol. 2019 08; 37(8):850-852.Nat Biotechnol2019-08-01T00:00:002019Clarify the HIPAA right of access to individuals' research data.Authorship 953689531402353Guerrini CJ, Wagner JK, Nelson SC, Javitt GH, McGuire ALGenetics in medicine : official journal of the American College of Medical GeneticsWho's on third? Regulation of third-party genetic interpretation services. Genet Med. 2020 01; 22(1):4-11.Genet Med2019-08-12T00:00:002019Who's on third? Regulation of third-party genetic interpretation services.Authorship 954968731487526Sierra-Mercado D, Zuk P, Beauchamp MS, Sheth SA, Yoshor D, Goodman WK, McGuire AL, L?zaro-Mu?oz GNeuronDevice Removal Following Brain Implant Research. Neuron. 2019 09 04; 103(5):759-761.Neuron2019-09-04T00:00:002019Device Removal Following Brain Implant Research.Authorship 9559084Authorship 956156331544641Guerrini CJ, Wexler A, Zettler PJ, McGuire ALThe American journal of bioethics : AJOBBiomedical Citizen Science or Something Else? 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JCO Precis Oncol. 2017; 1.JCO Precis Oncol2017-05-31T00:00:002017Parental Perspectives on Whole Exome Sequencing in Pediatric Cancer: A Typology of Perceived Utility.true1Associate ProfessorAssociate Professortrue1Adjunct ProfessorAdjunct ProfessorAuthorship 987955332330224Antommaria AHM, Gibb TS, McGuire AL, Wolpe PR, Wynia MK, Applewhite MK, Caplan A, Diekema DS, Hester DM, Lehmann LS, McLeod-Sordjan R, Schiff T, Tabor HK, Wieten SE, Eberl JT, Task Force of the Association of Bioethics Program DirectorsAnnals of internal medicineVentilator Triage Policies During the COVID-19 Pandemic at U.S. Hospitals Associated With Members of the Association of Bioethics Program Directors. Ann Intern Med. 2020 08 04; 173(3):188-194.Ann Intern Med2020-04-24T00:00:002020Ventilator Triage Policies During the COVID-19 Pandemic at U.S. Hospitals Associated With Members of the Association of Bioethics Program Directors.Authorship 9882432Authorship 9882476Authorship 988250532342743Majumder MA, McGuire ALThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsData Sharing in the Context of Health-Related Citizen Science. J Law Med Ethics. 2020 03; 48(1_suppl):167-177.J Law Med Ethics2020-03-01T00:00:002020Data Sharing in the Context of Health-Related Citizen Science.32342781Gutierrez AM, Hofstetter JD, Dishner EL, Chiao E, Rai D, McGuire ALThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsA Right to Privacy and Confidentiality: Ethical Medical Care for Patients in United States Immigration Detention. J Law Med Ethics. 2020 03; 48(1):161-168.J Law Med Ethics2020-03-01T00:00:002020A Right to Privacy and Confidentiality: Ethical Medical Care for Patients in United States Immigration Detention.32342790Wolf SM, Ossorio PN, Berry SA, Greely HT, McGuire AL, Penny MA, Terry SF, LawSeq Framework Task ForceThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsIntegrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics. J Law Med Ethics. 2020 03; 48(1):69-86.J Law Med Ethics2020-03-01T00:00:002020Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics.true1ProfessorProfessortrue1ProfessorProfessorAuthorship 989275332393563Tolat ND, Naik-Mathuria BJ, McGuire ALAnnals of family medicinePhysician Involvement in Promoting Gun Safety. Ann Fam Med. 2020 05; 18(3):262-264.Ann Fam Med2020-05-01T00:00:002020Physician Involvement in Promoting Gun Safety.Authorship 991352132511078McGuire AL, Aulisio MP, Davis FD, Erwin C, Harter TD, Jagsi R, Klitzman R, Macauley R, Racine E, Wolf SM, Wynia M, Wolpe PR, COVID-19 Task Force of the Association of Bioethics Program Directors (ABPD)The American journal of bioethics : AJOBEthical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force. Am J Bioeth. 2020 07; 20(7):15-27.Am J Bioeth2020-06-08T00:00:002020Ethical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force.Authorship 995797332735764Majumder MA, Guerrini CJ, McGuire ALAnnual review of medicineDirect-to-Consumer Genetic Testing: Value and Risk. Annu Rev Med. 2021 01 27; 72:151-166.Annu Rev Med2020-07-31T00:00:002020Direct-to-Consumer Genetic Testing: Value and Risk.Authorship 9973501832807975Pereira S, Hsu RL, Islam R, Robinson JO, Ramapriyan R, Sirotich E, Maxwell MD, Majumder M, Blout CL, Christensen KD, Mehlman M, Parasidis E, Gardner CL, Killian JM, De Castro M, Green RC, MilSeq Project, McGuire ALGenetics in medicine : official journal of the American College of Medical GeneticsAirmen and health-care providers' attitudes toward the use of genomic sequencing in the US Air Force: findings from the MilSeq Project. Genet Med. 2020 12; 22(12):2003-2010.Genet Med2020-08-18T00:00:002020Airmen and health-care providers' attitudes toward the use of genomic sequencing in the US Air Force: findings from the MilSeq Project.Authorship 997939132839576McGuire AL, Gabriel S, Tishkoff SA, Wonkam A, Chakravarti A, Furlong EEM, Treutlein B, Meissner A, Chang HY, L?pez-Bigas N, Segal E, Kim JSNature reviews. 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J Occup Health. 2020 Jan; 62(1):e12169.J Occup Health2020-01-01T00:00:002020Essential, not peripheral: Addressing health care workers' mental health concerns during the COVID-19 pandemic.Authorship 1187471Authorship 1145111Authorship 10064871133281581Mu?oz KA, Kostick K, Sanchez C, Kalwani L, Torgerson L, Hsu R, Sierra-Mercado D, Robinson JO, Outram S, Koenig BA, Pereira S, McGuire A, Zuk P, L?zaro-Mu?oz GFrontiers in human neuroscienceResearcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials. 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Front Hum Neurosci. 2020; 14:578687.Front Hum Neurosci2020-12-17T00:00:002020Researcher Perspectives on Data Sharing in Deep Brain Stimulation.Authorship 12064222024-06-30NIHGUERRINI, CHRISTI ;MCGUIRE, AMY L2020-09-16After the Golden State Killer: Public Preferences and Policy Implications of Police Use of Genetic Data (The ForenSeq Study)R01HG011268Co-Principal InvestigatorAuthorship 1013921233728981Smith HS, McGuire AL, Wittenberg E, Lavelle TAPersonalized medicineFamily-level impact of genetic testing: integrating health economics and ethical, legal, and social implications. Per Med. 2021 05; 18(3):209-212.Per Med2021-03-17T00:00:002021Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications.Authorship 1211081Authorship 1016339233853829Boff LM, McGuire AL, Raphael JLHospital pediatricsHospital-Based Education for Hospitalized Children: Current Practice and Future Direction. Hosp Pediatr. 2021 05; 11(5):e75-e77.Hosp Pediatr2021-04-14T00:00:002021Hospital-Based Education for Hospitalized Children: Current Practice and Future Direction.Authorship 1016731433880184Guerrini CJ, Wickenheiser RA, Bettinger B, McGuire AL, Fullerton SMJournal of law and the biosciencesFour misconceptions about investigative genetic genealogy. J Law Biosci. 2021 Jan-Jun; 8(1):lsab001.J Law Biosci2021-04-13T00:00:002021Four misconceptions about investigative genetic genealogy.Authorship 10176931333948230Goddard KAB, Angelo FAN, Ackerman SL, Berg JS, Biesecker BB, Danila MI, East KM, Hindorff LA, Horowitz CR, Hunter JE, Joseph G, Knight SJ, McGuire A, Muessig KR, Ou J, Outram S, Rahn EJ, Ramos MA, Rini C, Robinson JO, Smith HS, Waltz M, Lee SSJournal of clinical and translational scienceLessons learned about harmonizing survey measures for the CSER consortium. 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J Pers Med. 2021 Jul 08; 11(7).J Pers Med2021-07-08T00:00:002021Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation.Authorship 102821315Authorship 1028301834424265Pereira S, Smith HS, Frankel LA, Christensen KD, Islam R, Robinson JO, Genetti CA, Blout Zawatsky CL, Zettler B, Parad RB, Waisbren SE, Beggs AH, Green RC, Holm IA, McGuire AL, BabySeq Project TeamJAMA pediatricsPsychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial. 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NPJ Genom Med. 2021 Aug 24; 6(1):72.NPJ Genom Med2021-08-24T00:00:002021Behavioral and psychological impact of genome sequencing: a pilot randomized trial of primary care and cardiology patients.Authorship 1173632true1Distinguished Service ProfessorDistinguished Service ProfessorAuthorship 10320142134658003Smith HS, Morain SR, Robinson JO, Canfield I, Malek J, Rubanovich CK, Bloss CS, Ackerman SL, Biesecker B, Brothers KB, Goytia CN, Horowitz CR, Knight SJ, Koenig B, Kraft SA, Outram S, Rini C, Shipman KJ, Waltz M, Wilfond B, McGuire ALThe patientPerceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development. 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Front Hum Neurosci. 2022; 16:813922.Front Hum Neurosci2022-04-14T00:00:002022Researchers' Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement.24223516Caulfield T, Evans J, McGuire A, McCabe C, Bubela T, Cook-Deegan R, Fishman J, Hogarth S, Miller FA, Ravitsky V, Biesecker B, Borry P, Cho MK, Carroll JC, Etchegary H, Joly Y, Kato K, Lee SS, Rothenberg K, Sankar P, Szego MJ, Ossorio P, Pullman D, Rousseau F, Ungar WJ, Wilson BPLoS biologyReflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate. 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J Adolesc Young Adult Oncol. 2023 10; 12(5):773-781.J Adolesc Young Adult Oncol2023-01-02T00:00:002023Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.36282588Smith HS, Sanchez CE, Maag R, Buentello A, Murdock DR, Metcalf GA, Hadley TD, Riconda DL, Boerwinkle E, Wehrens XHT, Ballantyne CM, Gibbs RA, McGuire AL, Pereira SCirculation. Genomic and precision medicinePatient and Clinician Perceptions of Precision Cardiology Care: Findings From the HeartCare Study. Circ Genom Precis Med. 2022 12; 15(6):e003605.Circ Genom Precis Med2022-10-25T00:00:002022Patient and Clinician Perceptions of Precision Cardiology Care: Findings From the HeartCare Study.35964081Hysong SJ, McGuire ALBMC medical ethicsIncreasing physician participation as subjects in scientific and quality improvement research. 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Front Psychol. 2023; 14:1016337.Front Psychol2023-01-23T00:00:002023Public mental health during and after the SARS-CoV-2 pandemic: Opportunities for intervention via emotional self-efficacy and resilience.Authorship 10644001036814524Guerrini CJ, Majumder MA, Robinson JO, Cook-Deegan R, Blank M, Bollinger J, Geary J, Gutierrez AM, Shrikant M, McGuire ALFrontiers in big dataFresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability. Front Big Data. 2023; 6:1095119.Front Big Data2023-02-06T00:00:002023Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability.Authorship 1067816137104606McGuire AL, Lynch HF, Grossman LA, Cohen IGScience (New York, N.Y.)Pressing regulatory challenges for psychedelic medicine. Science. 2023 04 28; 380(6643):347-350.Science2023-04-27T00:00:002023Pressing regulatory challenges for psychedelic medicine.Authorship 130352Authorship 133141Authorship 107296212Authorship 107367916Authorship 1074202237279760Green RC, Shah N, Genetti CA, Yu T, Zettler B, Uveges MK, Ceyhan-Birsoy O, Lebo MS, Pereira S, Agrawal PB, Parad RB, McGuire AL, Christensen KD, Schwartz TS, Rehm HL, Holm IA, Beggs AH, BabySeq Project TeamAmerican journal of human geneticsActionability of unanticipated monogenic disease risks in newborn genomic screening: Findings from the BabySeq Project. 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Citiz Sci. 2022; 7(1).Citiz Sci2022-12-15T00:00:002022An Ethics Framework for Evaluating Ownership Practices in Biomedical Citizen Science.Authorship 1074959837456713Robinson JO, Daoud A, Geary J, Rahimzadeh V, Bollinger J, Guerrini CJ, Cook-Deegan R, McGuire AL, Majumder MAJournal of law and the biosciencesPolicy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi. J Law Biosci. 2023 Jul-Dec; 10(2):lsad022.J Law Biosci2023-07-14T00:00:002023Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi.https://www.texaschildrens.org/find-a-doctor/sharon-e-plon-md-phd-facmgTexas Children's Hospital ProfileAuthorship 1075594437487184Rahimzadeh V, Kostick-Quenet K, Blumenthal Barby J, McGuire ALThe American journal of bioethics : AJOBEthics Education for Healthcare Professionals in the Era of ChatGPT and Other Large Language Models: Do We Still Need It? Am J Bioeth. 2023 Oct; 23(10):17-27.Am J Bioeth2023-07-24T00:00:002023Ethics Education for Healthcare Professionals in the Era of ChatGPT and Other Large Language Models: Do We Still Need It?Authorship 1077484637647482Kostick-Quenet K, Rahimzadeh V, Anandasabapathy S, Hurley M, Sonig A, Mcguire AThe American journal of bioethics : AJOBIntegrating Social Determinants of Health into Ethical Digital Simulations. Am J Bioeth. 2023 09; 23(9):57-60.Am J Bioeth2023-09-01T00:00:002023Integrating Social Determinants of Health into Ethical Digital Simulations.Authorship 10799612237769066Rahimzadeh V, Fogarty J, Caulfield T, Au??n-Chancellor S, Borry P, Candia J, Cohen IG, Covington M, Lynch HF, Greely HT, Hanlon M, Hatt J, Low L, Menikoff J, Meslin EM, Platts S, Ravitsky V, Ruttley T, Seidler RD, Sugarman J, Urquieta E, Williams MA, Wolpe PR, Donoviel D, McGuire ALScience (New York, N.Y.)Ethically cleared to launch? Science. 2023 09 29; 381(6665):1408-1411.Science2023-09-28T00:00:002023Ethically cleared to launch?Authorship 10831461337944519Rahimzadeh V, Jones KM, Majumder MA, Kahana MJ, Rutishauser U, Williams ZM, Cash SS, Paulk AC, Zheng J, Beauchamp MS, Collinger JL, Pouratian N, McGuire AL, Sheth SA, NIH Research Opportunities in Humans (ROH) ConsortiumNeuronBenefits of sharing neurophysiology data from the BRAIN Initiative Research Opportunities in Humans Consortium. Neuron. 2023 Dec 06; 111(23):3710-3715.Neuron2023-11-08T00:00:002023Benefits of sharing neurophysiology data from the BRAIN Initiative Research Opportunities in Humans Consortium.Authorship 202931true1Distinguished Emeritus ProfessorDistinguished Emeritus ProfessorAuthorship 224382Authorship 10869881238225886Vuocolo B, Gutierrez AM, Robinson JO, Recinos AM, Desrosiers LR, Majumder MA, Bernini JC, Gill J, Griffin T, Tomlinson GE, Vallance K, McGuire AL, Parsons DW, Plon SE, Scollon SJournal of genetic counselingFamilies' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle". J Genet Couns. 2024 Jan 15.J Genet Couns2024-01-15T00:00:002024Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle".Authorship 10876071038250770Smith HS, Robinson JO, Levchenko A, Pereira S, Pascual B, Bradbury K, Arbones V, Fong J, Shulman JM, McGuire AL, Masdeu JJournal of Alzheimer's disease : JADResearch Participants' Perspectives on Precision Diagnostics for Alzheimer's Disease. J Alzheimers Dis. 2024; 97(3):1261-1274.J Alzheimers Dis2024-01-01T00:00:002024Research Participants' Perspectives on Precision Diagnostics for Alzheimer's Disease.Authorship 171972Authorship 1089864638422559Guerrini CJ, Bash Brooks W, Robinson JO, Fullerton SM, Zoorob E, McGuire ALForensic science internationalIGG in the trenches: Results of an in-depth interview study on the practice, politics, and future of investigative genetic genealogy. Forensic Sci Int. 2024 Mar; 356:111946.Forensic Sci Int2024-02-01T00:00:002024IGG in the trenches: Results of an in-depth interview study on the practice, politics, and future of investigative genetic genealogy.true1Associate ProfessorAssociate ProfessorAuthorship 210846Authorship 221471Authorship 238793Authorship 276711NIH/NICHD20182013Genome Sequence-Based Screening for Childhood Risk and Newborn Illnesses (Co-PI)NIH/NINR20182013A Multi-omics Approach Towards Deciphering the Influence of the Microbiome on Preterm Birth (Co-I)NIH/NHGRI20162013Evaluating Benefit-Risk Trade-offs for Clinical Use of Whole Genome Sequencing (Co-I)NIH/NHGRI20152011The Human Genome Sequencing Center (Co-I)NIH/NIDDK20142010The Human Microbiome in Pediatric Abdominal Pain and Intestinal Inflammation (Co-I)NIH/NHGRI20142011Returning Research Results of Pediatric Genomic Research to Participants (Co-I)NIH/NHGRI20152011Baylor-Johns Hopkins Center for Mendelian Genetics (Co-I)CPRIT20142010Tumor Banking for Genomic Research and Clinical Translation (Co-PI)NIH/NHGRI20152011Incorporation of Genomic Sequencing into Pediatric Cancer Care (Co-I)NIH/NHGRI20152011Integration of Whole Genome Sequencing into Clinical Medicine (Co-PI)NIH/NHGRI20152012Clinical Integration of Whole Genome Sequencing: A Policy Analysis (PI)Authorship 32771524616359Burstein MD, Robinson JO, Hilsenbeck SG, McGuire AL, Lau CCPediatricsPediatric data sharing in genomic research: attitudes and preferences of parents. Pediatrics. 2014 Apr; 133(4):690-7.Pediatrics2014-03-10T00:00:002014Pediatric data sharing in genomic research: attitudes and preferences of parents.Authorship 355732Authorship 3717712Authorship 272624Authorship 285255Authorship 417051Authorship 1394344STACEYPEREIRASTACEY PEREIRA7274PEREIRA, STACEYAssistant ProfessorAuthorship 1421914Authorship 1431981724188662Caskey CT, Gonzalez-Garay ML, Pereira S, McGuire ALAnnual review of medicineAdult genetic risk screening. Annu Rev Med. 2014; 65:1-17.Annu Rev Med2013-11-04T00:00:002013Adult genetic risk screening.24645908Vassy JL, Lautenbach DM, McLaughlin HM, Kong SW, Christensen KD, Krier J, Kohane IS, Feuerman LZ, Blumenthal-Barby J, Roberts JS, Lehmann LS, Ho CY, Ubel PA, MacRae CA, Seidman CE, Murray MF, McGuire AL, Rehm HL, Green RC, MedSeq ProjectTrialsThe MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine. Trials. 2014 Mar 20; 15:85.Trials2014-03-20T00:00:002014The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine.24077424McGuire AL, Robinson JO, Ramoni RB, Morley DS, Jofe S, Plon SEPersonalized medicineReturning genetic research results: study type matters. Per Med. 2013 Jan; 10(1):27-34.Per Med2013-01-01T00:00:002013Returning genetic research results: study type matters.Authorship 401337Authorship 1457105Authorship 145999124406460Holm IA, Savage SK, Green RC, Juengst E, McGuire A, Kornetsky S, Brewster SJ, Joffe S, Taylor PGenetics in medicine : official journal of the American College of Medical GeneticsGuidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board. Genet Med. 2014 Jul; 16(7):547-52.Genet Med2014-01-09T00:00:002014Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.24676095McGuire AL, Knoppers BM, Zawati MH, Clayton EWGenome researchCan I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings. Genome Res. 2014 May; 24(5):719-23.Genome Res2014-03-27T00:00:002014Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.Authorship 459151Authorship 649001Authorship 50201Authorship 526733Authorship 533071Authorship 760982Authorship 570451Authorship 585523Authorship 847185Authorship 1511173Authorship 151987224989832Chandrasekharan S, McGuire AL, Van den Veyver IBPrenatal diagnosisDo recent US Supreme Court rulings on patenting of genes and genetic diagnostics affect the practice of genetic screening and diagnosis in prenatal and reproductive care? Prenat Diagn. 2014 Oct; 34(10):921-6.Prenat Diagn2014-07-31T00:00:002014Do recent US Supreme Court rulings on patenting of genes and genetic diagnostics affect the practice of genetic screening and diagnosis in prenatal and reproductive care?25178093Pereira S, Gibbs RA, McGuire ALGenesOpen access data sharing in genomic research. Genes (Basel). 2014 Aug 29; 5(3):739-47.Genes (Basel)2014-08-29T00:00:002014Open access data sharing in genomic research.Authorship 638651Authorship 1530023Authorship 1530504Authorship 15307512Authorship 153131225298287Kaufman D, Curnutte M, McGuire ALThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & EthicsClinical integration of next generation sequencing: a policy analysis. J Law Med Ethics. 2014; 42 Suppl 1:5-8.J Law Med Ethics2014-01-01T00:00:002014Clinical integration of next generation sequencing: a policy analysis.25299915Curnutte MA, Frumovitz KL, Bollinger JM, McGuire AL, Kaufman DJNature biotechnologyDevelopment of the clinical next-generation sequencing industry in a shifting policy climate. Nat Biotechnol. 2014 Oct; 32(10):980-2.Nat Biotechnol2014-10-01T00:00:002014Development of the clinical next-generation sequencing industry in a shifting policy climate.25317207Scollon S, Bergstrom K, Kerstein RA, Wang T, Hilsenbeck SG, Ramamurthy U, Gibbs RA, Eng CM, Chintagumpala MM, Berg SL, McCullough LB, McGuire AL, Plon SE, Parsons DWGenome medicineObtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients. Genome Med. 2014; 6(9):69.Genome Med2014-09-17T00:00:002014Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients.25329206Blumenthal-Barby JS, McGuire AL, Ubel PAAnnals of internal medicineWhy information alone is not enough: behavioral economics and the future of genomic medicine. Ann Intern Med. 2014 Oct 21; 161(8):605-6.Ann Intern Med2014-10-21T00:00:002014Why information alone is not enough: behavioral economics and the future of genomic medicine.Authorship 647662Authorship 713702Authorship 720011Authorship 75601Authorship 78412Authorship 15452810Authorship 1557113