AMY MCGUIRE to Adult
This is a "connection" page, showing publications AMY MCGUIRE has written about Adult.
Connection Strength
0.785
-
FIGG at 5: An update on U.S. public perspectives on forensic investigative genetic genealogy five years after its introduction to criminal investigations. Forensic Sci Int. 2025 Feb; 367:112372.
Score: 0.058
-
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development. Patient. 2022 05; 15(3):317-328.
Score: 0.046
-
Responsibility, culpability, and parental views on genomic testing for seriously ill children. Genet Med. 2019 12; 21(12):2791-2797.
Score: 0.039
-
Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):70-87.
Score: 0.038
-
Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique. PLoS Biol. 2018 10; 16(10):e2006906.
Score: 0.037
-
When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing. AJOB Empir Bioeth. 2017 Apr-Jun; 8(2):82-88.
Score: 0.033
-
Adult genetic risk screening. Annu Rev Med. 2014; 65:1-17.
Score: 0.026
-
Participants' recall and understanding of genomic research and large-scale data sharing. J Empir Res Hum Res Ethics. 2013 Oct; 8(4):42-52.
Score: 0.026
-
Point-counterpoint. Ethics and genomic incidental findings. Science. 2013 May 31; 340(6136):1047-8.
Score: 0.026
-
Currents in contemporary bioethics. Identifying consanguinity through routine genomic analysis: reporting requirements. J Law Med Ethics. 2012; 40(4):1040-6.
Score: 0.023
-
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives. Public Health Genomics. 2012; 15(2):106-14.
Score: 0.023
-
To share or not to share: a randomized trial of consent for data sharing in genome research. Genet Med. 2011 Nov; 13(11):948-55.
Score: 0.023
-
The right to ignore genetic status of late onset genetic disease in the genomic era; Prenatal testing for Huntington disease as a paradigm. Am J Med Genet A. 2010 Jul; 152A(7):1774-80.
Score: 0.021
-
Social networkers' attitudes toward direct-to-consumer personal genome testing. Am J Bioeth. 2009; 9(6-7):3-10.
Score: 0.019
-
Family genetic risk communication and reverse cascade testing in the BabySeq project. Genet Med. 2025 Mar; 27(3):101350.
Score: 0.014
-
Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening. Genet Med. 2024 Nov; 26(11):101240.
Score: 0.014
-
"The truth should not be hidden": Experiences and recommendations of individuals making NPE discoveries through genetic genealogy databases. Genet Med. 2024 Oct; 26(10):101210.
Score: 0.014
-
Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents. Genet Med. 2024 Aug; 26(8):101168.
Score: 0.014
-
Measuring perceived utility of genomic sequencing: Development and validation of?the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing. Genet Med. 2024 Aug; 26(8):101146.
Score: 0.014
-
Public Perspectives on Investigative Genetic Genealogy: Findings from a National Focus Group Study. AJOB Empir Bioeth. 2024 Oct-Dec; 15(4):280-290.
Score: 0.014
-
Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle". J Genet Couns. 2024 Dec; 33(6):1337-1350.
Score: 0.013
-
Parents' decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project. Genet Med. 2023 03; 25(3):100002.
Score: 0.012
-
Deciding with Others: Interdependent Decision-Making. Hastings Cent Rep. 2022 11; 52(6):23-32.
Score: 0.012
-
Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial. JAMA Pediatr. 2021 11 01; 175(11):1132-1141.
Score: 0.012
-
Genetic testing in ambulatory cardiology clinics reveals high rate of findings with clinical management implications. Genet Med. 2021 12; 23(12):2404-2414.
Score: 0.011
-
Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies. Genet Med. 2019 12; 21(12):2781-2790.
Score: 0.010
-
Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium. Genome Med. 2019 02 27; 11(1):10.
Score: 0.010
-
Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project. Pediatrics. 2019 01; 143(Suppl 1):S6-S13.
Score: 0.009
-
Returning a Genomic Result for an Adult-Onset Condition to the Parents of a Newborn: Insights From the BabySeq Project. Pediatrics. 2019 01; 143(Suppl 1):S37-S43.
Score: 0.009
-
Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents. Patient Educ Couns. 2019 04; 102(4):680-686.
Score: 0.009
-
Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study. Genet Med. 2019 05; 21(5):1100-1110.
Score: 0.009
-
Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project. Genet Med. 2019 03; 21(3):622-630.
Score: 0.009
-
The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations. Am J Hum Genet. 2018 09 06; 103(3):319-327.
Score: 0.009
-
How Primary Care Providers Talk to Patients about Genome Sequencing Results: Risk, Rationale, and Recommendation. J Gen Intern Med. 2018 06; 33(6):877-885.
Score: 0.009
-
Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project. Genet Med. 2018 09; 20(9):1069-1076.
Score: 0.009
-
Do privacy and security regulations need a status update? Perspectives from an intergenerational survey. PLoS One. 2017; 12(9):e0184525.
Score: 0.009
-
The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial. Ann Intern Med. 2017 08 01; 167(3):159-169.
Score: 0.009
-
Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience. Milbank Q. 2017 06; 95(2):291-318.
Score: 0.008
-
Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 06 02; 98(6):1051-1066.
Score: 0.008
-
Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing. J Empir Res Hum Res Ethics. 2016 02; 11(1):21-30.
Score: 0.008
-
Pregnant patients' risk perception of prenatal test results with uncertain fetal clinical significance: ultrasound versus advanced genetic testing. Prenat Diagn. 2015 Dec; 35(12):1213-7.
Score: 0.008
-
Are physicians prepared for whole genome sequencing? a qualitative analysis. Clin Genet. 2016 Feb; 89(2):228-34.
Score: 0.007
-
A one-page summary report of genome sequencing for the healthy adult. Public Health Genomics. 2015; 18(2):123-9.
Score: 0.007
-
Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject. J Law Med Ethics. 2015; 43(3):529-37.
Score: 0.007
-
The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine. Trials. 2014 Mar 20; 15:85.
Score: 0.007
-
Pediatric data sharing in genomic research: attitudes and preferences of parents. Pediatrics. 2014 Apr; 133(4):690-7.
Score: 0.007
-
Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board. Genet Med. 2014 Jul; 16(7):547-52.
Score: 0.007
-
Personalized genomic disease risk of volunteers. Proc Natl Acad Sci U S A. 2013 Oct 15; 110(42):16957-62.
Score: 0.007
-
Exploring concordance and discordance for return of incidental findings from clinical sequencing. Genet Med. 2012 Apr; 14(4):405-10.
Score: 0.006
-
Whole-genome sequencing in a patient with Charcot-Marie-Tooth neuropathy. N Engl J Med. 2010 Apr 01; 362(13):1181-91.
Score: 0.005