AMY MCGUIRE to Surveys and Questionnaires
This is a "connection" page, showing publications AMY MCGUIRE has written about Surveys and Questionnaires.
Connection Strength
1.109
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Treatment Decision-Making Roles and Preferences Among Adolescents and Young Adults With Cancer. Pediatr Blood Cancer. 2026 Jun; 73(6):e70235.
Score: 0.118
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Ethical controversies in organ procurement: A national survey on public perceptions of thoracoabdominal normothermic regional perfusion. Am J Transplant. 2026 Apr; 26(4):785-796.
Score: 0.116
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FIGG at 5: An update on U.S. public perspectives on forensic investigative genetic genealogy five years after its introduction to criminal investigations. Forensic Sci Int. 2025 Feb; 367:112372.
Score: 0.109
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Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services. Am J Hum Genet. 2022 03 03; 109(3):486-497.
Score: 0.089
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Direct-to-Consumer Drug Advertisement and Prescribing Practices: Evidence Review and Practical Guidance for Clinicians. J Gen Intern Med. 2021 05; 36(5):1390-1394.
Score: 0.081
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Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique. PLoS Biol. 2018 10; 16(10):e2006906.
Score: 0.071
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HEADS4: Social Media Screening in Adolescent Primary Care. Pediatrics. 2018 06; 141(6).
Score: 0.069
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When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing. AJOB Empir Bioeth. 2017 Apr-Jun; 8(2):82-88.
Score: 0.063
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Social networkers' attitudes toward direct-to-consumer personal genome testing. Am J Bioeth. 2009; 9(6-7):3-10.
Score: 0.036
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Differences Between Government, Consortium, and Private Database Stewards Impacting the Genomic Data Market: A Survey of U.S. Academic Genetic Researchers. AJOB Empir Bioeth. 2026 Jan-Mar; 17(1):20-29.
Score: 0.030
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"Holy Cow, Where do I Sign up?" Attitudes of Military Veterans Toward Epigenomic Biomarker Toxic Exposure Testing. Mil Med. 2025 Jun 30; 190(7-8):e1663-e1669.
Score: 0.028
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Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening. Genet Med. 2024 Nov; 26(11):101240.
Score: 0.026
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"The truth should not be hidden": Experiences and recommendations of individuals making NPE discoveries through genetic genealogy databases. Genet Med. 2024 Oct; 26(10):101210.
Score: 0.026
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Genomic sequencing research in pediatric cancer care: Decision making, attitudes, and perceived utility among adolescents and young adults and their parents. Genet Med. 2024 Aug; 26(8):101168.
Score: 0.026
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Measuring perceived utility of genomic sequencing: Development and validation of?the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing. Genet Med. 2024 Aug; 26(8):101146.
Score: 0.026
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Patient and Clinician Perceptions of Precision Cardiology Care: Findings From the HeartCare Study. Circ Genom Precis Med. 2022 12; 15(6):e003605.
Score: 0.023
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Ventilator Triage Policies During the COVID-19 Pandemic at U.S. Hospitals Associated With Members of the Association of Bioethics Program Directors. Ann Intern Med. 2020 08 04; 173(3):188-194.
Score: 0.020
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Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium. Genome Med. 2019 02 27; 11(1):10.
Score: 0.018
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Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project. Pediatrics. 2019 01; 143(Suppl 1):S6-S13.
Score: 0.018
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Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project. Genet Med. 2018 09; 20(9):1069-1076.
Score: 0.017
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Do privacy and security regulations need a status update? Perspectives from an intergenerational survey. PLoS One. 2017; 12(9):e0184525.
Score: 0.016
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Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genet Med. 2018 04; 20(5):545-553.
Score: 0.016
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Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience. Milbank Q. 2017 06; 95(2):291-318.
Score: 0.016
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Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing. J Empir Res Hum Res Ethics. 2016 02; 11(1):21-30.
Score: 0.015
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Pregnant patients' risk perception of prenatal test results with uncertain fetal clinical significance: ultrasound versus advanced genetic testing. Prenat Diagn. 2015 Dec; 35(12):1213-7.
Score: 0.014
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Pediatric data sharing in genomic research: attitudes and preferences of parents. Pediatrics. 2014 Apr; 133(4):690-7.
Score: 0.013
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Principal investigator views of the IRB system. Int J Med Sci. 2008 Apr 02; 5(2):68-72.
Score: 0.009