AMY MCGUIRE to Genetic Research
This is a "connection" page, showing publications AMY MCGUIRE has written about Genetic Research.
Connection Strength
3.405
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Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs? BMC Med Ethics. 2019 11 21; 20(1):84.
Score: 0.647
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Participants' recall and understanding of genomic research and large-scale data sharing. J Empir Res Hum Res Ethics. 2013 Oct; 8(4):42-52.
Score: 0.422
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Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives. Public Health Genomics. 2012; 15(2):106-14.
Score: 0.374
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Informed consent in genomics and genetic research. Annu Rev Genomics Hum Genet. 2010; 11:361-81.
Score: 0.326
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Identifiability of DNA data: the need for consistent federal policy. Am J Bioeth. 2008 Oct; 8(10):75-6.
Score: 0.299
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Genetics. No longer de-identified. Science. 2006 Apr 21; 312(5772):370-1.
Score: 0.252
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Meeting the growing demands of genetic research. J Law Med Ethics. 2006; 34(4):809-12.
Score: 0.247
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"A Double-Edged Sword": A Brief History of Genomic Data Governance and Genetic Researcher Perspectives on Data Sharing. J Law Med Ethics. 2024; 52(2):399-411.
Score: 0.227
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When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing. AJOB Empir Bioeth. 2017 Apr-Jun; 8(2):82-88.
Score: 0.133
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Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject. J Law Med Ethics. 2015; 43(3):529-37.
Score: 0.115
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Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board. Genet Med. 2014 Jul; 16(7):547-52.
Score: 0.108
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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group. Circ Cardiovasc Genet. 2010 Dec; 3(6):574-80.
Score: 0.087
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Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genet Med. 2010 Oct; 12(10):616-20.
Score: 0.086
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Newborn Sequencing in Genomic Medicine and Public Health. Pediatrics. 2017 Feb; 139(2).
Score: 0.033
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Experiences and attitudes of genome investigators regarding return of individual genetic test results. Genet Med. 2013 Nov; 15(11):882-7.
Score: 0.026
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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility. Genome Res. 2012 Mar; 22(3):421-8.
Score: 0.023