AMY MCGUIRE to Disclosure
This is a "connection" page, showing publications AMY MCGUIRE has written about Disclosure.
Connection Strength
2.312
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When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing. AJOB Empir Bioeth. 2017 Apr-Jun; 8(2):82-88.
Score: 0.489
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Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings. Genome Res. 2014 May; 24(5):719-23.
Score: 0.401
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Currents in contemporary bioethics. Identifying consanguinity through routine genomic analysis: reporting requirements. J Law Med Ethics. 2012; 40(4):1040-6.
Score: 0.344
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Learning Health System - Moving from Ethical Frameworks to Practical Implementation. J Law Med Ethics. 2019 09; 47(3):454-458.
Score: 0.146
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Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies. Genet Med. 2019 12; 21(12):2781-2790.
Score: 0.144
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Responsibility, culpability, and parental views on genomic testing for seriously ill children. Genet Med. 2019 12; 21(12):2791-2797.
Score: 0.144
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Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents. Patient Educ Couns. 2019 04; 102(4):680-686.
Score: 0.138
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The ethics of conducting molecular autopsies in cases of sudden death in the young. Genome Res. 2016 09; 26(9):1165-9.
Score: 0.118
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Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject. J Law Med Ethics. 2015; 43(3):529-37.
Score: 0.106
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Participants' recall and understanding of genomic research and large-scale data sharing. J Empir Res Hum Res Ethics. 2013 Oct; 8(4):42-52.
Score: 0.097
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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility. Genome Res. 2012 Mar; 22(3):421-8.
Score: 0.086
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Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study. Genet Med. 2019 05; 21(5):1100-1110.
Score: 0.034
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Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project. Genet Med. 2018 09; 20(9):1069-1076.
Score: 0.033
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Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genet Med. 2018 04; 20(5):545-553.
Score: 0.032