AMY MCGUIRE to Aged
This is a "connection" page, showing publications AMY MCGUIRE has written about Aged.
Connection Strength
0.278
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When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing. AJOB Empir Bioeth. 2017 Apr-Jun; 8(2):82-88.
Score: 0.041
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Participants' recall and understanding of genomic research and large-scale data sharing. J Empir Res Hum Res Ethics. 2013 Oct; 8(4):42-52.
Score: 0.033
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Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives. Public Health Genomics. 2012; 15(2):106-14.
Score: 0.029
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To share or not to share: a randomized trial of consent for data sharing in genome research. Genet Med. 2011 Nov; 13(11):948-55.
Score: 0.028
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Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening. Genet Med. 2024 Nov; 26(11):101240.
Score: 0.017
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"The truth should not be hidden": Experiences and recommendations of individuals making NPE discoveries through genetic genealogy databases. Genet Med. 2024 Oct; 26(10):101210.
Score: 0.017
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Public Perspectives on Investigative Genetic Genealogy: Findings from a National Focus Group Study. AJOB Empir Bioeth. 2024 Oct-Dec; 15(4):280-290.
Score: 0.017
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Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium. Genome Med. 2019 02 27; 11(1):10.
Score: 0.012
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Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project. Genet Med. 2018 09; 20(9):1069-1076.
Score: 0.011
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Do privacy and security regulations need a status update? Perspectives from an intergenerational survey. PLoS One. 2017; 12(9):e0184525.
Score: 0.011
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The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial. Ann Intern Med. 2017 08 01; 167(3):159-169.
Score: 0.011
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Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience. Milbank Q. 2017 06; 95(2):291-318.
Score: 0.010
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Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing. J Empir Res Hum Res Ethics. 2016 02; 11(1):21-30.
Score: 0.010
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Are physicians prepared for whole genome sequencing? a qualitative analysis. Clin Genet. 2016 Feb; 89(2):228-34.
Score: 0.009
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The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine. Trials. 2014 Mar 20; 15:85.
Score: 0.008
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Pediatric data sharing in genomic research: attitudes and preferences of parents. Pediatrics. 2014 Apr; 133(4):690-7.
Score: 0.008
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Whole-genome sequencing in a patient with Charcot-Marie-Tooth neuropathy. N Engl J Med. 2010 Apr 01; 362(13):1181-91.
Score: 0.006