AMY MCGUIRE to Information Dissemination
This is a "connection" page, showing publications AMY MCGUIRE has written about Information Dissemination.
Connection Strength
7.303
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Data Sharing in the Context of Health-Related Citizen Science. J Law Med Ethics. 2020 03; 48(1_suppl):167-177.
Score: 0.559
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Introduction: Sharing Data in a Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):7-11.
Score: 0.522
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Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):12-20.
Score: 0.522
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Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. J Law Med Ethics. 2019 03; 47(1):70-87.
Score: 0.522
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Who Owns the Data in a Medical Information Commons? J Law Med Ethics. 2019 03; 47(1):62-69.
Score: 0.522
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Creating a data resource: what will it take to build a medical information commons? Genome Med. 2017 09 22; 9(1):84.
Score: 0.472
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Sharing data under the 21st Century Cures Act. Genet Med. 2017 12; 19(12):1289-1294.
Score: 0.462
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Moving beyond Bermuda: sharing data to build a medical information commons. Genome Res. 2017 06; 27(6):897-901.
Score: 0.457
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Beyond Our Borders? Public Resistance to Global Genomic Data Sharing. PLoS Biol. 2016 Nov; 14(11):e2000206.
Score: 0.444
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Participants' recall and understanding of genomic research and large-scale data sharing. J Empir Res Hum Res Ethics. 2013 Oct; 8(4):42-52.
Score: 0.359
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Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives. Public Health Genomics. 2012; 15(2):106-14.
Score: 0.318
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To share or not to share: a randomized trial of consent for data sharing in genome research. Genet Med. 2011 Nov; 13(11):948-55.
Score: 0.314
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Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience. Genome Res. 2011 Jul; 21(7):1001-7.
Score: 0.305
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Genetics. No longer de-identified. Science. 2006 Apr 21; 312(5772):370-1.
Score: 0.214
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The BRAIN Initiative data-sharing ecosystem: Characteristics, challenges, benefits, and opportunities. Elife. 2024 Nov 27; 13.
Score: 0.194
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"A Double-Edged Sword": A Brief History of Genomic Data Governance and Genetic Researcher Perspectives on Data Sharing. J Law Med Ethics. 2024; 52(2):399-411.
Score: 0.193
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"Extremely slow and capricious": A qualitative exploration of genetic researcher priorities in selecting shared data resources. Genet Med. 2023 01; 25(1):115-124.
Score: 0.169
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How NFTs could transform health information exchange. Science. 2022 02 04; 375(6580):500-502.
Score: 0.160
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Genomic Data-Sharing Practices. J Law Med Ethics. 2019 03; 47(1):31-40.
Score: 0.130
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What is a Medical Information Commons? J Law Med Ethics. 2019 03; 47(1):41-50.
Score: 0.130
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Characterizing the Biomedical Data-Sharing Landscape. J Law Med Ethics. 2019 03; 47(1):21-30.
Score: 0.130
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Pediatric data sharing in genomic research: attitudes and preferences of parents. Pediatrics. 2014 Apr; 133(4):690-7.
Score: 0.092
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Benefits of sharing neurophysiology data from the BRAIN Initiative Research Opportunities in Humans Consortium. Neuron. 2023 12 06; 111(23):3710-3715.
Score: 0.045
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An open access pilot freely sharing cancer genomic data from participants in Texas. Sci Data. 2016 Feb 16; 3:160010.
Score: 0.026
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Identifying personal genomes by surname inference. Science. 2013 Jan 18; 339(6117):321-4.
Score: 0.021
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Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genet Med. 2010 Oct; 12(10):616-20.
Score: 0.018