AMY MCGUIRE to Informed Consent
This is a "connection" page, showing publications AMY MCGUIRE has written about Informed Consent.
Connection Strength
4.158
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Are Psychedelic Experiences Transformative? Can We Consent to Them? Perspect Biol Med. 2024; 67(1):143-154.
Score: 0.720
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Return of individual genomic research results: what do consent forms tell participants? Eur J Hum Genet. 2016 11; 24(11):1524-1529.
Score: 0.428
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Participants' recall and understanding of genomic research and large-scale data sharing. J Empir Res Hum Res Ethics. 2013 Oct; 8(4):42-52.
Score: 0.354
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Informed consent in genomics and genetic research. Annu Rev Genomics Hum Genet. 2010; 11:361-81.
Score: 0.273
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Please don't call my mom: pediatric consent and confidentiality. Clin Pediatr (Phila). 2009 Apr; 48(3):243-6.
Score: 0.254
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Identifiability of DNA data: the need for consistent federal policy. Am J Bioeth. 2008 Oct; 8(10):75-6.
Score: 0.250
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Meeting the growing demands of genetic research. J Law Med Ethics. 2006; 34(4):809-12.
Score: 0.207
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Developing an Ethics and Policy Framework for Psychedelic Clinical Care: A Consensus Statement. JAMA Netw Open. 2024 06 03; 7(6):e2414650.
Score: 0.185
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Toward Meeting the Obligation of Respect for Persons in Pragmatic Clinical Trials. Hastings Cent Rep. 2022 05; 52(3):9-17.
Score: 0.160
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Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics. J Law Med Ethics. 2020 03; 48(1):69-86.
Score: 0.138
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Genomic Data-Sharing Practices. J Law Med Ethics. 2019 03; 47(1):31-40.
Score: 0.129
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Ethical and Legal Challenges Associated with Public Molecular Autopsies. J Law Med Ethics. 2016 06; 44(2):309-18.
Score: 0.106
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Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing. J Empir Res Hum Res Ethics. 2016 02; 11(1):21-30.
Score: 0.105
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Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives. Public Health Genomics. 2012; 15(2):106-14.
Score: 0.078
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To share or not to share: a randomized trial of consent for data sharing in genome research. Genet Med. 2011 Nov; 13(11):948-55.
Score: 0.078
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Informed consent in research to improve the number and quality of deceased donor organs. Crit Care Med. 2011 Feb; 39(2):280-3.
Score: 0.074
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Taking DNA from the dead. Nat Rev Genet. 2010 May; 11(5):318.
Score: 0.069
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The ethical use of existing samples for genome research. Genet Med. 2009 Oct; 11(10):712-5.
Score: 0.067
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Ethical, legal, and social considerations in conducting the Human Microbiome Project. Genome Res. 2008 Dec; 18(12):1861-4.
Score: 0.063
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Consent: informed, simple, implied and presumed. Am J Bioeth. 2007 Dec; 7(12):49-50; discussion W3-4.
Score: 0.059
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Genetics. No longer de-identified. Science. 2006 Apr 21; 312(5772):370-1.
Score: 0.053
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Respect as an organizing normative category for research ethics. Am J Bioeth. 2005; 5(1):W1-2.
Score: 0.048
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Public Perspectives on Investigative Genetic Genealogy: Findings from a National Focus Group Study. AJOB Empir Bioeth. 2024 Oct-Dec; 15(4):280-290.
Score: 0.046
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A typology of shared decision making, informed consent, and simple consent. Ann Intern Med. 2004 Jan 06; 140(1):54-9.
Score: 0.045
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Deciding with Others: Interdependent Decision-Making. Hastings Cent Rep. 2022 11; 52(6):23-32.
Score: 0.042
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Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project. Genet Med. 2019 03; 21(3):622-630.
Score: 0.031
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Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genet Med. 2018 04; 20(5):545-553.
Score: 0.029
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Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genet Med. 2010 Oct; 12(10):616-20.
Score: 0.018
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Beneficent persuasion: techniques and ethical guidelines to improve patients' decisions. Ann Fam Med. 2010 May-Jun; 8(3):260-4.
Score: 0.017
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Developing a tissue resource to characterize the genome of pancreatic cancer. World J Surg. 2009 Apr; 33(4):723-31.
Score: 0.016
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Principal investigator views of the IRB system. Int J Med Sci. 2008 Apr 02; 5(2):68-72.
Score: 0.015