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AMY LYNN MCGUIRE

TitleDirector
InstitutionBaylor College of Medicine
DepartmentCenter for Medical Ethics and Health Policy
DivisionCtr for Med Ethics & Health Policy
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    Other Positions
    TitleProfessor
    InstitutionBaylor College of Medicine
    DepartmentDepartment of Medicine
    DivisionMedicine-General Medicine

    TitleProfessor
    InstitutionBaylor College of Medicine
    DepartmentCenter for Medical Ethics and Health Policy
    DivisionCtr for Med Ethics & Health Policy


    Collapse ORNG Applications 
    Collapse Verify Publications

    Collapse Biography 
    Collapse awards and honors
    2013 - 2018Genome Sequence-Based Screening for Childhood Risk and Newborn Illnesses (Co-PI), NIH/NICHD
    2013 - 2018A Multi-omics Approach Towards Deciphering the Influence of the Microbiome on Preterm Birth (Co-I), NIH/NINR
    2013 - 2016Evaluating Benefit-Risk Trade-offs for Clinical Use of Whole Genome Sequencing (Co-I), NIH/NHGRI
    2012 - 2015Clinical Integration of Whole Genome Sequencing: A Policy Analysis (PI), NIH/NHGRI
    2011 - 2015Integration of Whole Genome Sequencing into Clinical Medicine (Co-PI), NIH/NHGRI
    2011 - 2015Incorporation of Genomic Sequencing into Pediatric Cancer Care (Co-I), NIH/NHGRI
    2011 - 2015The Human Genome Sequencing Center (Co-I), NIH/NHGRI
    2011 - 2015Baylor-Johns Hopkins Center for Mendelian Genetics (Co-I), NIH/NHGRI
    2011 - 2014Returning Research Results of Pediatric Genomic Research to Participants (Co-I), NIH/NHGRI
    2010 - 2014The Human Microbiome in Pediatric Abdominal Pain and Intestinal Inflammation (Co-I), NIH/NIDDK
    2010 - 2014Tumor Banking for Genomic Research and Clinical Translation (Co-PI), CPRIT

    Collapse Research 
    Collapse research activities and funding
    R01HG004333     (MCGUIRE, AMY LYNN)Aug 2, 2007 - Jul 31, 2011
    NIH/NHGRI
    The ethics of consent for the public release of potentially identifiable DNA data
    Role: Principal Investigator

    R01HG004853     (MCGUIRE, AMY LYNN)Jul 10, 2009 - Jun 30, 2013
    NIH/NHGRI
    Ethical Legal and Social Dimensions of Human Microbiome Research
    Role: Principal Investigator

    U01HG006485     (PLON, SHARON E.)Dec 5, 2011 - May 31, 2021
    NIH/NHGRI
    Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of Texas: The KidsCanSeq Study
    Role: Co-Principal Investigator

    R01HG006460     (MCGUIRE, AMY LYNN)Aug 1, 2012 - Jul 31, 2016
    NIH/NHGRI
    Clinical Integration of Whole Genome Sequencing: A Policy Analysis
    Role: Principal Investigator

    R01HG008918     (MCGUIRE, AMY LYNN)Sep 14, 2015 - Jun 30, 2018
    NIH/NHGRI
    Building the Medical Information Commons: Participant Engagement and Policy
    Role: Principal Investigator

    R01MH114854     (LAZARO-MUNOZ, GABRIEL)Sep 15, 2017 - Aug 31, 2021
    NIH/NIMH
    Neuroethics of aDBS Systems Targeting Neuropsychiatric and Movement Disorders
    Role: Co-Principal Investigator

    R01CA237118     (COOK-DEEGAN, ROBERT MULLAN)Apr 1, 2019 - Mar 31, 2023
    NIH/NCI
    The Sulston Project: making the knowledge commons for interpreting cancer genomic variants more effective
    Role: Co-Principal Investigator

    Collapse Bibliographic 
    Collapse selected publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
    List All   |   Timeline
    1. Sierra-Mercado D, Zuk P, Beauchamp MS, Sheth SA, Yoshor D, Goodman WK, McGuire AL, Lázaro-Muñoz G. Device Removal Following Brain Implant Research. Neuron. 2019 Sep 04; 103(5):759-761. PMID: 31487526.
      View in: PubMed
    2. Morain SR, Majumder MA, McGuire AL. Learning Health System - Moving from Ethical Frameworks to Practical Implementation. J Law Med Ethics. 2019 Sep; 47(3):454-458. PMID: 31560628.
      View in: PubMed
    3. Guerrini CJ, Wagner JK, Nelson SC, Javitt GH, McGuire AL. Who's on third? Regulation of third-party genetic interpretation services. Genet Med. 2019 Aug 12. PMID: 31402353.
      View in: PubMed
    4. Guerrini CJ, Wexler A, Zettler PJ, McGuire AL. Biomedical Citizen Science or Something Else? Reflections on Terms and Definitions. Am J Bioeth. 2019 Aug; 19(8):17-19. PMID: 31544641.
      View in: PubMed
    5. Guerrini CJ, Botkin JR, McGuire AL. Clarify the HIPAA right of access to individuals' research data. Nat Biotechnol. 2019 Aug; 37(8):850-852. PMID: 31337889.
      View in: PubMed
    6. Lázaro-Muñoz G, Zuk P, Pereira S, Kostick K, Torgerson L, Sierra-Mercado D, Majumder M, Blumenthal-Barby J, Storch EA, Goodman WK, McGuire AL. Neuroethics at 15: Keep the Kant but Add More Bacon. AJOB Neurosci. 2019 Jul-Sep; 10(3):97-100. PMID: 31329079.
      View in: PubMed
    7. Robinson JO, Wynn J, Biesecker B, Biesecker LG, Bernhardt B, Brothers KB, Chung WK, Christensen KD, Green RC, McGuire AL, Hart MR, Griesemer I, Patrick DL, Rini C, Veenstra D, Cronin AM, Gray SW. Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies. Genet Med. 2019 Jun 13. PMID: 31189963.
      View in: PubMed
    8. Malek J, Pereira S, Robinson JO, Gutierrez AM, Slashinski MJ, Parsons DW, Plon SE, McGuire AL. Responsibility, culpability, and parental views on genomic testing for seriously ill children. Genet Med. 2019 Jun 12. PMID: 31186522.
      View in: PubMed
    9. Burke W, Clayton EW, Wolf SM, Berry SA, Evans BJ, Evans JP, Hall R, Korngiebel D, Laberge AM, LeRoy BS, McGuire AL. Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines. Genet Med. 2019 Jun 04. PMID: 31160753.
      View in: PubMed
    10. Adashi EY, Caplan AL, Capron A, Chapman AR, Cho M, Clayton EW, Cohen IG, Cook-Deegan R, Faden RR, Friedmann T, Gostin LO, Greely HT, Johnston J, Juengst E, King PA, Knowles LP, Lyerly AD, McGuire AL, Moreno JD, Rothenberg K, Truog RD, Walters L. In support of mitochondrial replacement therapy. Nat Med. 2019 06; 25(6):870-871. PMID: 31160819.
      View in: PubMed
    11. Horowitz CR, Orlando LA, Slavotinek AM, Peterson J, Angelo F, Biesecker B, Bonham VL, Cameron LD, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hindorff LA, Jarvik GP, Kaufman D, Kenny EE, Knight SJ, Koenig BA, Korf BR, Madden E, McGuire AL, Ou J, Wasserstein MP, Robinson M, Leventhal H, Sanderson SC. The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research. Am J Hum Genet. 2019 Jun 06; 104(6):1088-1096. PMID: 31104772.
      View in: PubMed
    12. Hart MR, Biesecker BB, Blout CL, Christensen KD, Amendola LM, Bergstrom KL, Biswas S, Bowling KM, Brothers KB, Conlin LK, Cooper GM, Dulik MC, East KM, Everett JN, Finnila CR, Ghazani AA, Gilmore MJ, Goddard KAB, Jarvik GP, Johnston JJ, Kauffman TL, Kelley WV, Krier JB, Lewis KL, McGuire AL, McMullen C, Ou J, Plon SE, Rehm HL, Richards CS, Romasko EJ, Sagardia AM, Spinner NB, Thompson ML, Turbitt E, Vassy JL, Wilfond BS, Veenstra DL, Berg JS, Green RC, Biesecker LG, Hindorff LA. Correction: Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study. Genet Med. 2019 May; 21(5):1261-1262. PMID: 30670880.
      View in: PubMed
    13. Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MA. Characterizing the Biomedical Data-Sharing Landscape. J Law Med Ethics. 2019 Mar; 47(1):21-30. PMID: 30994069.
      View in: PubMed
    14. Deverka PA, Gilmore D, Richmond J, Smith Z, Mangrum R, Koenig BA, Cook-Deegan R, Villanueva AG, Majumder MA, McGuire AL. Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. J Law Med Ethics. 2019 Mar; 47(1):70-87. PMID: 30994071.
      View in: PubMed
    15. McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, Koenig BA, Lambright JM, Mattison JE, O'Donnell C, Rai AK, Rodriguez LL, Simoncelli T, Terry SF, Thorogood AM, Watson MS, Wilbanks JT, Cook-Deegan R. Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons. J Law Med Ethics. 2019 Mar; 47(1):12-20. PMID: 30994067.
      View in: PubMed
    16. Cook-Deegan R, Majumder MA, McGuire AL. Introduction: Sharing Data in a Medical Information Commons. J Law Med Ethics. 2019 Mar; 47(1):7-11. PMID: 30994058.
      View in: PubMed
    17. Villanueva AG, Cook-Deegan R, Robinson JO, McGuire AL, Majumder MA. Genomic Data-Sharing Practices. J Law Med Ethics. 2019 Mar; 47(1):31-40. PMID: 30994063.
      View in: PubMed
    18. McGuire AL, Roberts J, Aas S, Evans BJ. Who Owns the Data in a Medical Information Commons? J Law Med Ethics. 2019 Mar; 47(1):62-69. PMID: 30994077.
      View in: PubMed
    19. Bollinger JM, Zuk PD, Majumder MA, Versalovic E, Villanueva AG, Hsu RL, McGuire AL, Cook-Deegan R. What is a Medical Information Commons? J Law Med Ethics. 2019 Mar; 47(1):41-50. PMID: 30994065.
      View in: PubMed
    20. Zoltick ES, Linderman MD, McGinniss MA, Ramos E, Ball MP, Church GM, Leonard DGB, Pereira S, McGuire AL, Caskey CT, Sanderson SC, Schadt EE, Nielsen DE, Crawford SD, Green RC. Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium. Genome Med. 2019 02 27; 11(1):10. PMID: 30808425.
      View in: PubMed
    21. Zuk P, McGuire AL, Lázaro-Muñoz G. Alienation, Quality of Life, and DBS for Depression. AJOB Neurosci. 2018; 9(4):223-225. PMID: 31011471.
      View in: PubMed
    22. Ceyhan-Birsoy O, Murry JB, Machini K, Lebo MS, Yu TW, Fayer S, Genetti CA, Schwartz TS, Agrawal PB, Parad RB, Holm IA, McGuire AL, Green RC, Rehm HL, Beggs AH. Interpretation of Genomic Sequencing Results in Healthy and Ill Newborns: Results from the BabySeq Project. Am J Hum Genet. 2019 Jan 03; 104(1):76-93. PMID: 30609409.
      View in: PubMed
    23. Pereira S, Robinson JO, Gutierrez AM, Petersen DK, Hsu RL, Lee CH, Schwartz TS, Holm IA, Beggs AH, Green RC, McGuire AL. Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project. Pediatrics. 2019 01; 143(Suppl 1):S6-S13. PMID: 30600265.
      View in: PubMed
    24. VanNoy GE, Genetti CA, McGuire AL, Green RC, Beggs AH, Holm IA. Challenging the Current Recommendations for Carrier Testing in Children. Pediatrics. 2019 01; 143(Suppl 1):S27-S32. PMID: 30600268.
      View in: PubMed
    25. Holm IA, McGuire A, Pereira S, Rehm H, Green RC, Beggs AH. Returning a Genomic Result for an Adult-Onset Condition to the Parents of a Newborn: Insights From the BabySeq Project. Pediatrics. 2019 01; 143(Suppl 1):S37-S43. PMID: 30600270.
      View in: PubMed
    26. Gutierrez AM, Statham EE, Robinson JO, Slashinski MJ, Scollon S, Bergstrom KL, Street RL, Parsons DW, Plon SE, McGuire AL. Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families. Patient Educ Couns. 2019 05; 102(5):895-901. PMID: 30581014.
      View in: PubMed
    27. Pierpont ME, Brueckner M, Chung WK, Garg V, Lacro RV, McGuire AL, Mital S, Priest JR, Pu WT, Roberts A, Ware SM, Gelb BD, Russell MW. Genetic Basis for Congenital Heart Disease: Revisited: A Scientific Statement From the American Heart Association. Circulation. 2018 11 20; 138(21):e653-e711. PMID: 30571578.
      View in: PubMed
    28. Botkin JR, Appelbaum PS, Bakken S, Brown C, Burke W, Fabsitz R, Gamble VN, Gonsalves G, Kost R, Leonard DGB, McGuire A, Nichols JH, Patrick-Lake B, Wilkins CH, Zikmund-Fisher BJ. Standardizing return of participant results. Science. 2018 11 16; 362(6416):759-760. PMID: 30442797.
      View in: PubMed
    29. Scollon S, Majumder MA, Bergstrom K, Wang T, McGuire AL, Robinson JO, Gutierrez AM, Lee CH, Hilsenbeck SG, Plon SE, Parsons DW, Street RL. Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents. Patient Educ Couns. 2019 04; 102(4):680-686. PMID: 30482469.
      View in: PubMed
    30. Hart MR, Biesecker BB, Blout CL, Christensen KD, Amendola LM, Bergstrom KL, Biswas S, Bowling KM, Brothers KB, Conlin LK, Cooper GM, Dulik MC, East KM, Everett JN, Finnila CR, Ghazani AA, Gilmore MJ, Goddard KAB, Jarvik GP, Johnston JJ, Kauffman TL, Kelley WV, Krier JB, Lewis KL, McGuire AL, McMullen C, Ou J, Plon SE, Rehm HL, Richards CS, Romasko EJ, Miren Sagardia A, Spinner NB, Thompson ML, Turbitt E, Vassy JL, Wilfond BS, Veenstra DL, Berg JS, Green RC, Biesecker LG, Hindorff LA. Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study. Genet Med. 2019 05; 21(5):1100-1110. PMID: 30287922.
      View in: PubMed
    31. Guerrini CJ, Robinson JO, Petersen D, McGuire AL. Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique. PLoS Biol. 2018 10; 16(10):e2006906. PMID: 30278047.
      View in: PubMed
    32. Genetti CA, Schwartz TS, Robinson JO, VanNoy GE, Petersen D, Pereira S, Fayer S, Peoples HA, Agrawal PB, Betting WN, Holm IA, McGuire AL, Waisbren SE, Yu TW, Green RC, Beggs AH, Parad RB. Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project. Genet Med. 2019 03; 21(3):622-630. PMID: 30209271.
      View in: PubMed
    33. Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, Hassmiller-Lich K, Joseph G, Kenny EE, Koenig BA, Knight S, Kwok PY, Lewis KL, McGuire AL, Norton ME, Ou J, Parsons DW, Powell BC, Risch N, Robinson M, Rini C, Scollon S, Slavotinek AM, Veenstra DL, Wasserstein MP, Wilfond BS, Hindorff LA, Plon SE, Jarvik GP. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations. Am J Hum Genet. 2018 09 06; 103(3):319-327. PMID: 30193136.
      View in: PubMed
    34. Murry JB, Machini K, Ceyhan-Birsoy O, Kritzer A, Krier JB, Lebo MS, Fayer S, Genetti CA, VanNoy GE, Yu TW, Agrawal PB, Parad RB, Holm IA, McGuire AL, Green RC, Beggs AH, Rehm HL. Reconciling newborn screening and a novel splice variant in BTD associated with partial biotinidase deficiency: a BabySeq Project case report. Cold Spring Harb Mol Case Stud. 2018 08; 4(4). PMID: 29728376.
      View in: PubMed
    35. Guerrini CJ, Majumder MA, Lewellyn MJ, McGuire AL. Citizen science, public policy. Science. 2018 07 13; 361(6398):134-136. PMID: 30002244.
      View in: PubMed
    36. Holm IA, Agrawal PB, Ceyhan-Birsoy O, Christensen KD, Fayer S, Frankel LA, Genetti CA, Krier JB, LaMay RC, Levy HL, McGuire AL, Parad RB, Park PJ, Pereira S, Rehm HL, Schwartz TS, Waisbren SE, Yu TW, Green RC, Beggs AH. The BabySeq project: implementing genomic sequencing in newborns. BMC Pediatr. 2018 07 09; 18(1):225. PMID: 29986673.
      View in: PubMed
    37. Ram N, Guerrini CJ, McGuire AL. Genealogy databases and the future of criminal investigation. Science. 2018 06 08; 360(6393):1078-1079. PMID: 29880677.
      View in: PubMed
    38. Lázaro-Muñoz G, Yoshor D, Beauchamp MS, Goodman WK, McGuire AL. Continued access to investigational brain implants. Nat Rev Neurosci. 2018 06; 19(6):317-318. PMID: 29686310.
      View in: PubMed
    39. Clark DL, Raphael JL, McGuire AL. HEADS4: Social Media Screening in Adolescent Primary Care. Pediatrics. 2018 06; 141(6). PMID: 29716979.
      View in: PubMed
    40. Jiang Y, Wangler MF, McGuire AL, Lupski JR, Posey JE, Khayat MM, Murdock DR, Sanchez-Pulido L, Ponting CP, Xia F, Hunter JV, Meng Q, Murugan M, Gibbs RA. The phenotypic spectrum of Xia-Gibbs syndrome. Am J Med Genet A. 2018 06; 176(6):1315-1326. PMID: 29696776.
      View in: PubMed
    41. Christensen KD, Vassy JL, Phillips KA, Blout CL, Azzariti DR, Lu CY, Robinson JO, Lee K, Douglas MP, Yeh JM, Machini K, Stout NK, Rehm HL, McGuire AL, Green RC, Dukhovny D. Short-term costs of integrating whole-genome sequencing into primary care and cardiology settings: a pilot randomized trial. Genet Med. 2018 12; 20(12):1544-1553. PMID: 29565423.
      View in: PubMed
    42. Vassy JL, Davis JK, Kirby C, Richardson IJ, Green RC, McGuire AL, Ubel PA. How Primary Care Providers Talk to Patients about Genome Sequencing Results: Risk, Rationale, and Recommendation. J Gen Intern Med. 2018 06; 33(6):877-885. PMID: 29374360.
      View in: PubMed
    43. Roberts JS, Robinson JO, Diamond PM, Bharadwaj A, Christensen KD, Lee KB, Green RC, McGuire AL. Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project. Genet Med. 2018 09; 20(9):1069-1076. PMID: 29300387.
      View in: PubMed
    44. Gutierrez AM, Robinson JO, Statham EE, Scollon S, Bergstrom KL, Slashinski MJ, Parsons DW, Plon SE, McGuire AL, Street RL. Portero versus portador: Spanish interpretation of genomic terminology during whole exome sequencing results disclosure. Per Med. 2017 11; 14(6):503-514. PMID: 29749861.
      View in: PubMed
    45. Guerrini CJ, McGuire AL, Majumder MA, Bollinger JM, Rowan PJ. Constraints on gene patent protection fuel secrecy concerns: a qualitative study. J Law Biosci. 2017 Dec; 4(3):542-564. PMID: 29868184.
      View in: PubMed
    46. Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, Harris C, Knoppers BM, Koenig BA, Kohane IS, La Rosa S, Mattison J, O'Donnell CJ, Rai AK, Rehm HL, Rodriguez LL, Shelton R, Simoncelli T, Terry SF, Watson MS, Wilbanks J, Cook-Deegan R, McGuire AL. Creating a data resource: what will it take to build a medical information commons? Genome Med. 2017 09 22; 9(1):84. PMID: 28938910.
      View in: PubMed
    47. Pereira S, Robinson JO, Peoples HA, Gutierrez AM, Majumder MA, McGuire AL, Rothstein MA. Do privacy and security regulations need a status update? Perspectives from an intergenerational survey. PLoS One. 2017; 12(9):e0184525. PMID: 28926626.
      View in: PubMed
    48. Arora NS, Davis JK, Kirby C, McGuire AL, Green RC, Blumenthal-Barby JS, Ubel PA. Communication challenges for nongeneticist physicians relaying clinical genomic results. Per Med. 2016 Sep; 14(5):423-431. PMID: 29181085.
      View in: PubMed
    49. Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, Burke W. Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genet Med. 2018 04; 20(5):545-553. PMID: 28858330.
      View in: PubMed
    50. Vassy JL, Christensen KD, Schonman EF, Blout CL, Robinson JO, Krier JB, Diamond PM, Lebo M, Machini K, Azzariti DR, Dukhovny D, Bates DW, MacRae CA, Murray MF, Rehm HL, McGuire AL, Green RC. The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial. Ann Intern Med. 2017 08 01; 167(3):159-169. PMID: 28654958.
      View in: PubMed
    51. Messner DA, Koay P, Al Naber J, Cook-Deegan R, Majumder M, Javitt G, Dvoskin R, Bollinger J, Curnutte M, McGuire AL. Barriers to clinical adoption of next-generation sequencing: a policy Delphi panel's solutions. Per Med. 2017; 14(4):339-354. PMID: 29230253.
      View in: PubMed
    52. Lázaro-Muñoz G, McGuire AL, Goodman WK. Should we be concerned about preserving agency and personal identity in patients with Adaptive Deep Brain Stimulation systems? AJOB Neurosci. 2017; 8(2):73-75. PMID: 29238625.
      View in: PubMed
    53. Gollust SE, Gray SW, Carere DA, Koenig BA, Lehmann LS, McGUIRE AL, Sharp RR, Spector-Bagdady K, Wang NA, Green RC, Roberts JS. Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience. Milbank Q. 2017 06; 95(2):291-318. PMID: 28589610.
      View in: PubMed
    54. Majumder MA, Guerrini CJ, Bollinger JM, Cook-Deegan R, McGuire AL. Sharing data under the 21st Century Cures Act. Genet Med. 2017 12; 19(12):1289-1294. PMID: 28541278.
      View in: PubMed
    55. Marshall DA, MacDonald KV, Robinson JO, Barcellos LF, Gianfrancesco M, Helm M, McGuire A, Green RC, Douglas MP, Goldman MA, Phillips KA. The price of whole-genome sequencing may be decreasing, but who will be sequenced? Per Med. 2017 May; 14(3):203-211. PMID: 28993792.
      View in: PubMed
    56. Guerrini CJ, McGuire AL, Majumder MA. Myriad take two: Can genomic databases remain secret? Science. 2017 05 12; 356(6338):586-587. PMID: 28495717.
      View in: PubMed
    57. Green RC, Berg JS, Grody WW, Kalia SS, Korf BR, Martin CL, McGuire AL, Nussbaum RL, O'Daniel JM, Ormond KE, Rehm HL, Watson MS, Williams MS, Biesecker LG. CORRIGENDUM: ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing. Genet Med. 2017 05; 19(5):606. PMID: 28492529.
      View in: PubMed
    58. Cook-Deegan R, McGuire AL. Moving beyond Bermuda: sharing data to build a medical information commons. Genome Res. 2017 06; 27(6):897-901. PMID: 28373484.
      View in: PubMed
    59. Jamal L, Robinson JO, Christensen KD, Blumenthal-Barby J, Slashinski MJ, Perry DL, Vassy JL, Wycliff J, Green RC, McGuire AL. When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing. AJOB Empir Bioeth. 2017 Apr-Jun; 8(2):82-88. PMID: 28949844.
      View in: PubMed
    60. Berg JS, Agrawal PB, Bailey DB, Beggs AH, Brenner SE, Brower AM, Cakici JA, Ceyhan-Birsoy O, Chan K, Chen F, Currier RJ, Dukhovny D, Green RC, Harris-Wai J, Holm IA, Iglesias B, Joseph G, Kingsmore SF, Koenig BA, Kwok PY, Lantos J, Leeder SJ, Lewis MA, McGuire AL, Milko LV, Mooney SD, Parad RB, Pereira S, Petrikin J, Powell BC, Powell CM, Puck JM, Rehm HL, Risch N, Roche M, Shieh JT, Veeraraghavan N, Watson MS, Willig L, Yu TW, Urv T, Wise AL. Newborn Sequencing in Genomic Medicine and Public Health. Pediatrics. 2017 Feb; 139(2). PMID: 28096516.
      View in: PubMed
    61. Ceyhan-Birsoy O, Machini K, Lebo MS, Yu TW, Agrawal PB, Parad RB, Holm IA, McGuire A, Green RC, Beggs AH, Rehm HL. A curated gene list for reporting results of newborn genomic sequencing. Genet Med. 2017 07; 19(7):809-818. PMID: 28079900.
      View in: PubMed
    62. Roberts JL, Pereira S, McGuire AL. Should you profit from your genome? Nat Biotechnol. 2017 01 10; 35(1):18-20. PMID: 28072771.
      View in: PubMed
    63. Majumder MA, Cook-Deegan R, McGuire AL. Beyond Our Borders? Public Resistance to Global Genomic Data Sharing. PLoS Biol. 2016 Nov; 14(11):e2000206. PMID: 27806054.
      View in: PubMed
    64. Mathews DJ, Hester DM, Kahn J, McGuire A, McKinney R, Meador K, Philpott-Jones S, Youngner S, Wilfond BS. A Conceptual Model for the Translation of Bioethics Research and Scholarship. Hastings Cent Rep. 2016 09; 46(5):34-9. PMID: 27649827.
      View in: PubMed
    65. McGuire AL, Moore Q, Majumder M, Walkiewicz M, Eng CM, Belmont JW, Nassef S, Darilek S, Rutherford K, Pereira S, Scherer SE, Sutton VR, Wolf D, Gibbs RA, Kahn R, Sanchez LA. The ethics of conducting molecular autopsies in cases of sudden death in the young. Genome Res. 2016 09; 26(9):1165-9. PMID: 27412853.
      View in: PubMed
    66. Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 07 07; 99(1):246. PMID: 27392080.
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    68. Acharya A, Bingham K, Bradner J, Burke W, Charo RA, Cherry J, Choulika A, Coles T, Cook-Deegan R, Crook ST, Díaz E, Erickson B, Giddings LV, Giwa SE, Greenwood JC, Gulati V, Hall S, Harris J, Heywood J, Hill C, Levin J, Mangubat A, Maraganore J, Mariggi G, Mazur BJ, McGuire AL, Moll N, Moreno J, Naughton G, Nelsen L, Osbourn J, Perez D, Reed J, Schmidt E, Seyfert-Margolis V, Stoffels P, Thorball J, O'Toole T, Vainu I, van Deventer S, Zerhouni E, Zohar D. Erratum: Community crystal gazing. Nat Biotechnol. 2016 06 09; 34(6):666. PMID: 27281427.
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    69. Moore QL, Majumder MA, Rutherford LK, McGuire AL. Ethical and Legal Challenges Associated with Public Molecular Autopsies. J Law Med Ethics. 2016 06; 44(2):309-18. PMID: 27338606.
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    70. Messner DA, Al Naber J, Koay P, Cook-Deegan R, Majumder M, Javitt G, Deverka P, Dvoskin R, Bollinger J, Curnutte M, Chandrasekharan S, McGuire A. Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel. Appl Transl Genom. 2016 Sep; 10:19-24. PMID: 27668172.
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    71. Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 06 02; 98(6):1051-1066. PMID: 27181682.
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    72. Curnutte MA, Frumovitz KL, Bollinger JM, Cook-Deegan RM, McGuire AL, Majumder MA. Developing context-specific next-generation sequencing policy. Nat Biotechnol. 2016 05 06; 34(5):466-70. PMID: 27153269.
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    73. Parsons DW, Roy A, Yang Y, Wang T, Scollon S, Bergstrom K, Kerstein RA, Gutierrez S, Petersen AK, Bavle A, Lin FY, López-Terrada DH, Monzon FA, Hicks MJ, Eldin KW, Quintanilla NM, Adesina AM, Mohila CA, Whitehead W, Jea A, Vasudevan SA, Nuchtern JG, Ramamurthy U, McGuire AL, Hilsenbeck SG, Reid JG, Muzny DM, Wheeler DA, Berg SL, Chintagumpala MM, Eng CM, Gibbs RA, Plon SE. Diagnostic Yield of Clinical Tumor and Germline Whole-Exome Sequencing for Children With Solid Tumors. JAMA Oncol. 2016 May 01; 2(5):616-624. PMID: 26822237.
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    74. Acharya A, Bingham K, Bradner J, Burke W, Charo RA, Cherry J, Choulika A, Coles T, Cook-Deegan R, Crooke ST, Crook ST, Díaz E, Erickson B, Giddings LV, Giwa SE, Greenwood JC, Gulati V, Hall S, Harris J, Heywood J, Hill C, Levin J, Mangubat A, Maraganore J, Mariggi G, Mazur BJ, McGuire AL, Moll N, Moreno J, Naughton G, Nelsen L, Osbourn J, Perez D, Reed J, Schmidt E, Seyfert-Margolis V, Stoffels P, Thorball J, O'Toole T, Vainu I, van Deventer S, Zerhouni E, Zohar D. Community crystal gazing. Nat Biotechnol. 2016 Mar; 34(3):276-83. PMID: 26963550.
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    75. Robinson JO, Carroll TM, Feuerman LZ, Perry DL, Hoffman-Andrews L, Walsh RC, Christensen KD, Green RC, McGuire AL. Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing. J Empir Res Hum Res Ethics. 2016 02; 11(1):21-30. PMID: 26928896.
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    76. Becnel LB, Pereira S, Drummond JA, Gingras MC, Covington KR, Kovar CL, Doddapaneni HV, Hu J, Muzny D, McGuire AL, Wheeler DA, Gibbs RA. An open access pilot freely sharing cancer genomic data from participants in Texas. Sci Data. 2016 Feb 16; 3:160010. PMID: 26882539.
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    77. Guerrini CJ, Majumder MA, McGuire AL. Persistent confusion and controversy surrounding gene patents. Nat Biotechnol. 2016 Feb; 34(2):145-7. PMID: 26849516.
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    78. Frankel LA, Pereira S, McGuire AL. Potential Psychosocial Risks of Sequencing Newborns. Pediatrics. 2016 Jan; 137 Suppl 1:S24-9. PMID: 26729699.
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    79. Lupo PJ, Robinson JO, Diamond PM, Jamal L, Danysh HE, Blumenthal-Barby J, Lehmann LS, Vassy JL, Christensen KD, Green RC, McGuire AL. Patients' perceived utility of whole-genome sequencing for their healthcare: findings from the MedSeq project. Per Med. 2016 Jan 01; 13(1):13-20. PMID: 27019659.
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    80. Bruce CR, Majumder MA, Stephens A, Malek J, McGuire A. Cultivating Administrative Support for a Clinical Ethics Consultation Service. J Clin Ethics. 2016; 27(4):341-351. PMID: 28001140.
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    81. Caulfield T, Borry P, Toews M, Elger BS, Greely HT, McGuire A. Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion. J Law Biosci. 2015 Nov; 2(3):627-644. PMID: 27774215.
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    82. Moore QL, Paul ME, McGuire AL, Majumder MA. Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections. Am J Public Health. 2016 Jan; 106(1):40-4. PMID: 26562103.
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    83. McCullough LB, Slashinski MJ, McGuire AL, Street RL, Eng CM, Gibbs RA, Parsons DW, Plon SE. Is Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid Tumors. Pediatr Blood Cancer. 2016 Mar; 63(3):511-5. PMID: 26505993.
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    84. Richards EG, Sangi-Haghpeykar H, McGuire AL, Van den Veyver IB, Fruhman G. Pregnant patients' risk perception of prenatal test results with uncertain fetal clinical significance: ultrasound versus advanced genetic testing. Prenat Diagn. 2015 Dec; 35(12):1213-7. PMID: 26287960.
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    85. Robinson JO, Slashinski MJ, Chiao E, McGuire AL. It depends whose data are being shared: considerations for genomic data sharing policies. J Law Biosci. 2015 Nov; 2(3):697-704. PMID: 27774218.
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    86. Gambin T, Jhangiani SN, Below JE, Campbell IM, Wiszniewski W, Muzny DM, Staples J, Morrison AC, Bainbridge MN, Penney S, McGuire AL, Gibbs RA, Lupski JR, Boerwinkle E. Secondary findings and carrier test frequencies in a large multiethnic sample. Genome Med. 2015; 7(1):54. PMID: 26195989.
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    87. Green RC, Lautenbach D, McGuire AL. GINA, genetic discrimination, and genomic medicine. N Engl J Med. 2015 Jan 29; 372(5):397-9. PMID: 25629736.
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    88. Blumenthal-Barby JS, McGuire AL, Green RC, Ubel PA. How behavioral economics can help to avoid 'The last mile problem' in whole genome sequencing. Genome Med. 2015; 7(1):3. PMID: 25614766.
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    89. Vassy JL, McLaughlin HM, McLaughlin HL, MacRae CA, Seidman CE, Lautenbach D, Krier JB, Lane WJ, Kohane IS, Murray MF, McGuire AL, Rehm HL, Green RC. A one-page summary report of genome sequencing for the healthy adult. Public Health Genomics. 2015; 18(2):123-9. PMID: 25612602.
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    90. Scollon S, Bergstrom K, McCullough LB, McGuire AL, Gutierrez S, Kerstein R, Parsons DW, Plon SE. Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject. J Law Med Ethics. 2015; 43(3):529-37. PMID: 26479562.
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    91. Vassy JL, Christensen KD, Slashinski MJ, Lautenbach DM, Raghavan S, Robinson JO, Blumenthal-Barby J, Feuerman LZ, Lehmann LS, Murray MF, Green RC, McGuire AL. 'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project. Per Med. 2015; 12(1):23-32. PMID: 25642274.
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    92. Deverka PA, Kaufman D, McGuire AL. Overcoming the reimbursement barriers for clinical sequencing. JAMA. 2014 Nov 12; 312(18):1857-8. PMID: 25387182.
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    93. Blumenthal-Barby JS, McGuire AL, Ubel PA. Why information alone is not enough: behavioral economics and the future of genomic medicine. Ann Intern Med. 2014 Oct 21; 161(8):605-6. PMID: 25329206.
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    94. Curnutte MA, Frumovitz KL, Bollinger JM, McGuire AL, Kaufman DJ. Development of the clinical next-generation sequencing industry in a shifting policy climate. Nat Biotechnol. 2014 Oct; 32(10):980-2. PMID: 25299915.
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    95. Scollon S, Bergstrom K, Kerstein RA, Wang T, Hilsenbeck SG, Ramamurthy U, Gibbs RA, Eng CM, Chintagumpala MM, Berg SL, McCullough LB, McGuire AL, Plon SE, Parsons DW. Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients. Genome Med. 2014; 6(9):69. PMID: 25317207.
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    96. Pereira S, Gibbs RA, McGuire AL. Open access data sharing in genomic research. Genes (Basel). 2014 Aug 29; 5(3):739-47. PMID: 25178093.
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    97. Chandrasekharan S, McGuire AL, Van den Veyver IB. Do recent US Supreme Court rulings on patenting of genes and genetic diagnostics affect the practice of genetic screening and diagnosis in prenatal and reproductive care? Prenat Diagn. 2014 Oct; 34(10):921-6. PMID: 24989832.
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    98. Gill AC, Nelson EA, Mian AI, Raphael JL, Rowley DR, Mcguire AL. Responding to moderate breaches in professionalism: an intervention for medical students. Med Teach. 2015 Feb; 37(2):136-9. PMID: 24819504.
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    99. McGuire AL, Knoppers BM, Zawati MH, Clayton EW. Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings. Genome Res. 2014 May; 24(5):719-23. PMID: 24676095.
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    100. Vassy JL, Lautenbach DM, McLaughlin HM, Kong SW, Christensen KD, Krier J, Kohane IS, Feuerman LZ, Blumenthal-Barby J, Roberts JS, Lehmann LS, Ho CY, Ubel PA, MacRae CA, Seidman CE, Murray MF, McGuire AL, Rehm HL, Green RC. The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine. Trials. 2014 Mar 20; 15:85. PMID: 24645908.
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    101. Gray SW, Martins Y, Feuerman LZ, Bernhardt BA, Biesecker BB, Christensen KD, Joffe S, Rini C, Veenstra D, McGuire AL. Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group. Genet Med. 2014 Oct; 16(10):727-35. PMID: 24625446.
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    102. Burstein MD, Robinson JO, Hilsenbeck SG, McGuire AL, Lau CC. Pediatric data sharing in genomic research: attitudes and preferences of parents. Pediatrics. 2014 Apr; 133(4):690-7. PMID: 24616359.
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    103. Caulfield T, Burningham S, Joly Y, Master Z, Shabani M, Borry P, Becker A, Burgess M, Calder K, Critchley C, Edwards K, Fullerton SM, Gottweis H, Hyde-Lay R, Illes J, Isasi R, Kato K, Kaye J, Knoppers B, Lynch J, McGuire A, Meslin E, Nicol D, O'Doherty K, Ogbogu U, Otlowski M, Pullman D, Ries N, Scott C, Sears M, Wallace H, Zawati MH. A review of the key issues associated with the commercialization of biobanks. J Law Biosci. 2014 Mar; 1(1):94-110. PMID: 27774156.
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    104. Holm IA, Savage SK, Green RC, Juengst E, McGuire A, Kornetsky S, Brewster SJ, Joffe S, Taylor P. Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board. Genet Med. 2014 Jul; 16(7):547-52. PMID: 24406460.
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    105. Kaufman D, Curnutte M, McGuire AL. Clinical integration of next generation sequencing: a policy analysis. J Law Med Ethics. 2014; 42 Suppl 1:5-8. PMID: 25298287.
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    106. Caulfield T, Evans J, McGuire A, McCabe C, Bubela T, Cook-Deegan R, Fishman J, Hogarth S, Miller FA, Ravitsky V, Biesecker B, Borry P, Cho MK, Carroll JC, Etchegary H, Joly Y, Kato K, Lee SS, Rothenberg K, Sankar P, Szego MJ, Ossorio P, Pullman D, Rousseau F, Ungar WJ, Wilson B. Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate. PLoS Biol. 2013 Nov; 11(11):e1001699. PMID: 24223516.
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    107. Caskey CT, Gonzalez-Garay ML, Pereira S, McGuire AL. Adult genetic risk screening. Annu Rev Med. 2014; 65:1-17. PMID: 24188662.
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    108. Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL. Participants' recall and understanding of genomic research and large-scale data sharing. J Empir Res Hum Res Ethics. 2013 Oct; 8(4):42-52. PMID: 24169421.
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    109. Gonzalez-Garay ML, McGuire AL, Pereira S, Caskey CT. Personalized genomic disease risk of volunteers. Proc Natl Acad Sci U S A. 2013 Oct 15; 110(42):16957-62. PMID: 24082139.
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    110. Caulfield T, McGuire AL. Policy uncertainty, sequencing, and cell lines. G3 (Bethesda). 2013 Aug 07; 3(8):1205-7. PMID: 23926222.
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    111. Green RC, Berg JS, Grody WW, Kalia SS, Korf BR, Martin CL, McGuire AL, Nussbaum RL, O'Daniel JM, Ormond KE, Rehm HL, Watson MS, Williams MS, Biesecker LG. ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing. Genet Med. 2013 Jul; 15(7):565-74. PMID: 23788249.
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    112. McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC. Point-counterpoint. Ethics and genomic incidental findings. Science. 2013 May 31; 340(6136):1047-8. PMID: 23686340.
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    113. Ramoni RB, McGuire AL, Robinson JO, Morley DS, Plon SE, Joffe S. Experiences and attitudes of genome investigators regarding return of individual genetic test results. Genet Med. 2013 Nov; 15(11):882-7. PMID: 23639901.
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    114. Slashinski MJ, Whitney SN, Achenbaum LS, Keitel WA, McCurdy SA, McGuire AL. Investigators' perspectives on translating human microbiome research into clinical practice. Public Health Genomics. 2013; 16(3):127-33. PMID: 23615375.
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    115. McGuire AL, McCullough LB, Evans JP. The indispensable role of professional judgment in genomic medicine. JAMA. 2013 Apr 10; 309(14):1465-6. PMID: 23571582.
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    116. Bledsoe MJ, Clayton EW, McGuire AL, Grizzle WE, O'Rourke PP, Zeps N. Return of research results from genomic biobanks: a call for data. Genet Med. 2013 Feb; 15(2):159-60. PMID: 23386185.
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    117. Gymrek M, McGuire AL, Golan D, Halperin E, Erlich Y. Identifying personal genomes by surname inference. Science. 2013 Jan 18; 339(6117):321-4. PMID: 23329047.
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    118. McGuire AL, Robinson JO, Ramoni RB, Morley DS, Jofe S, Plon SE. Returning genetic research results: study type matters. Per Med. 2013 Jan; 10(1):27-34. PMID: 24077424.
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    119. Lewis MH, Scheurer ME, Green RC, McGuire AL. Research results: preserving newborn blood samples. Sci Transl Med. 2012 Nov 07; 4(159):159cm12. PMID: 23136040.
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    120. Slashinski MJ, McCurdy SA, Achenbaum LS, Whitney SN, McGuire AL. "Snake-oil," "quack medicine," and "industrially cultured organisms:" biovalue and the commercialization of human microbiome research. BMC Med Ethics. 2012 Oct 30; 13:28. PMID: 23110633.
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    121. Hanchard NA, Murdock DR, Magoulas PL, Bainbridge M, Muzny D, Wu Y, Wang M, Lupski JR, Gibbs RA, Brown CW. Exploring the utility of whole-exome sequencing as a diagnostic tool in a child with atypical episodic muscle weakness. Clin Genet. 2013 May; 83(5):457-461. PMID: 22901280.
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    122. Caulfield T, McGuire A. Athletes' use of unproven stem cell therapies: adding to inappropriate media hype? Mol Ther. 2012 Sep; 20(9):1656-8. PMID: 22945228.
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    123. Bledsoe MJ, Clayton EW, McGuire AL, Grizzle WE, O'Rourke PP, Zeps N. Return of research results from genomic biobanks: cost matters. Genet Med. 2013 Feb; 15(2):103-5. PMID: 22935716.
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    124. Gevers D, Knight R, Petrosino JF, Huang K, McGuire AL, Birren BW, Nelson KE, White O, Methé BA, Huttenhower C. The Human Microbiome Project: a community resource for the healthy human microbiome. PLoS Biol. 2012; 10(8):e1001377. PMID: 22904687.
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    125. Boone PM, Soens ZT, Campbell IM, Stankiewicz P, Cheung SW, Patel A, Beaudet AL, Plon SE, Shaw CA, McGuire AL, Lupski JR. Incidental copy-number variants identified by routine genome testing in a clinical population. Genet Med. 2013 Jan; 15(1):45-54. PMID: 22878507.
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    126. Green RC, Berg JS, Berry GT, Biesecker LG, Dimmock DP, Evans JP, Grody WW, Hegde MR, Kalia S, Korf BR, Krantz I, McGuire AL, Miller DT, Murray MF, Nussbaum RL, Plon SE, Rehm HL, Jacob HJ. Exploring concordance and discordance for return of incidental findings from clinical sequencing. Genet Med. 2012 Apr; 14(4):405-10. PMID: 22422049.
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    127. Fullerton SM, Wolf WA, Brothers KB, Clayton EW, Crawford DC, Denny JC, Greenland P, Koenig BA, Leppig KA, Lindor NM, McCarty CA, McGuire AL, McPeek Hinz ER, Mirel DB, Ramos EM, Ritchie MD, Smith ME, Waudby CJ, Burke W, Jarvik GP. Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network. Genet Med. 2012 Apr; 14(4):424-31. PMID: 22361898.
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    128. Clayton EW, McGuire AL. The legal risks of returning results of genomics research. Genet Med. 2012 Apr; 14(4):473-7. PMID: 22323070.
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    129. Cassa CA, Savage SK, Taylor PL, Green RC, McGuire AL, Mandl KD. Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility. Genome Res. 2012 Mar; 22(3):421-8. PMID: 22147367.
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    130. McGuire AL, Wang MJ, Probst FJ. Currents in contemporary bioethics. Identifying consanguinity through routine genomic analysis: reporting requirements. J Law Med Ethics. 2012; 40(4):1040-6. PMID: 23289705.
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    131. Oliver JM, Slashinski MJ, Wang T, Kelly PA, Hilsenbeck SG, McGuire AL. Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives. Public Health Genomics. 2012; 15(2):106-14. PMID: 22213783.
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    132. McGuire AL, Oliver JM, Slashinski MJ, Graves JL, Wang T, Kelly PA, Fisher W, Lau CC, Goss J, Okcu M, Treadwell-Deering D, Goldman AM, Noebels JL, Hilsenbeck SG. To share or not to share: a randomized trial of consent for data sharing in genome research. Genet Med. 2011 Nov; 13(11):948-55. PMID: 21785360.
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    133. Caulfield T, McGuire AL. Direct-to-consumer genetic testing: perceptions, problems, and policy responses. Annu Rev Med. 2012; 63:23-33. PMID: 21888511.
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    134. Oliver JM, McGuire AL. Exploring the ELSI universe: critical issues in the evolution of human genomic research. Genome Med. 2011 Jun 21; 3(6):38. PMID: 21699745.
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    135. McGuire AL, Basford M, Dressler LG, Fullerton SM, Koenig BA, Li R, McCarty CA, Ramos E, Smith ME, Somkin CP, Waudby C, Wolf WA, Clayton EW. Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience. Genome Res. 2011 Jul; 21(7):1001-7. PMID: 21632745.
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    136. Swindell JS, McGuire AL, Halpern SD. Shaping patients' decisions. Chest. 2011 Feb; 139(2):424-429. PMID: 21285056.
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    137. Rey MM, Ware LB, Matthay MA, Bernard GR, McGuire AL, Caplan AL, Halpern SD. Informed consent in research to improve the number and quality of deceased donor organs. Crit Care Med. 2011 Feb; 39(2):280-3. PMID: 20975549.
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    138. Fabsitz RR, McGuire A, Sharp RR, Puggal M, Beskow LM, Biesecker LG, Bookman E, Burke W, Burchard EG, Church G, Clayton EW, Eckfeldt JH, Fernandez CV, Fisher R, Fullerton SM, Gabriel S, Gachupin F, James C, Jarvik GP, Kittles R, Leib JR, O'Donnell C, O'Rourke PP, Rodriguez LL, Schully SD, Shuldiner AR, Sze RK, Thakuria JV, Wolf SM, Burke GL. Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group. Circ Cardiovasc Genet. 2010 Dec; 3(6):574-80. PMID: 21156933.
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    139. McGuire AL, Burke W. Health system implications of direct-to-consumer personal genome testing. Public Health Genomics. 2011; 14(1):53-8. PMID: 21071927.
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    140. McGuire AL, Evans BJ, Caulfield T, Burke W. Science and regulation. Regulating direct-to-consumer personal genome testing. Science. 2010 Oct 08; 330(6001):181-2. PMID: 20929761.
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    141. Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL. Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genet Med. 2010 Oct; 12(10):616-20. PMID: 20733502.
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    142. Erez A, Plunkett K, Sutton VR, McGuire AL. The right to ignore genetic status of late onset genetic disease in the genomic era; Prenatal testing for Huntington disease as a paradigm. Am J Med Genet A. 2010 Jul; 152A(7):1774-80. PMID: 20583190.
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    143. Swindell JS, McGuire AL, Halpern SD. Beneficent persuasion: techniques and ethical guidelines to improve patients' decisions. Ann Fam Med. 2010 May-Jun; 8(3):260-4. PMID: 20458111.
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    144. McGuire AL, Lupski JR. Personal genome research : what should the participant be told? Trends Genet. 2010 May; 26(5):199-201. PMID: 20381895.
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    145. McGuire AL, Majumder MA, Halpern SD, Swindell JS, Yaeger LV, Gibbs RA, Wheeler TM. Taking DNA from the dead. Nat Rev Genet. 2010 May; 11(5):318. PMID: 20332774.
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    146. Nelson EA, McGuire AL. The need for medical education reform: genomics and the changing nature of health information. Genome Med. 2010 Mar 17; 2(3):18. PMID: 20236478.
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    147. Lupski JR, Reid JG, Gonzaga-Jauregui C, Rio Deiros D, Chen DC, Nazareth L, Bainbridge M, Dinh H, Jing C, Wheeler DA, McGuire AL, Zhang F, Stankiewicz P, Halperin JJ, Yang C, Gehman C, Guo D, Irikat RK, Tom W, Fantin NJ, Muzny DM, Gibbs RA. Whole-genome sequencing in a patient with Charcot-Marie-Tooth neuropathy. N Engl J Med. 2010 Apr 01; 362(13):1181-91. PMID: 20220177.
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    148. Guttmacher AE, McGuire AL, Ponder B, Stefánsson K. Personalized genomic information: preparing for the future of genetic medicine. Nat Rev Genet. 2010 02; 11(2):161-5. PMID: 20065954.
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    149. McGuire AL, Beskow LM. Informed consent in genomics and genetic research. Annu Rev Genomics Hum Genet. 2010; 11:361-81. PMID: 20477535.
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    150. Bathe OF, McGuire AL. The ethical use of existing samples for genome research. Genet Med. 2009 Oct; 11(10):712-5. PMID: 19745750.
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    151. Fackler JL, McGuire AL. Paving the Way to Personalized Genomic Medicine: Steps to Successful Implementation. Curr Pharmacogenomics Person Med. 2009 Jun 01; 7(2):125. PMID: 20098629.
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    152. Belmont J, McGuire AL. The futility of genomic counseling: essential role of electronic health records. Genome Med. 2009 May 08; 1(5):48. PMID: 19439060.
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    153. Voidonikolas G, Gingras MC, Hodges S, McGuire AL, Chen C, Gibbs RA, Brunicardi FC, Fisher WE. Developing a tissue resource to characterize the genome of pancreatic cancer. World J Surg. 2009 Apr; 33(4):723-31. PMID: 19137368.
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    154. McGuire AL, Majumder MA. Two cheers for GINA? Genome Med. 2009 Jan 20; 1(1):6. PMID: 19348693.
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    155. Marietta C, McGuire AL. Currents in contemporary ethics. Direct-to-consumer genetic testing: is it the practice of medicine? J Law Med Ethics. 2009; 37(2):369-74. PMID: 19493081.
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    156. McGuire AL, Diaz CM, Wang T, Hilsenbeck SG. Social networkers' attitudes toward direct-to-consumer personal genome testing. Am J Bioeth. 2009; 9(6-7):3-10. PMID: 19998099.
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    157. Bruce CR, Berg SL, McGuire AL. Please don't call my mom: pediatric consent and confidentiality. Clin Pediatr (Phila). 2009 Apr; 48(3):243-6. PMID: 19074356.
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    158. McGuire AL, Burke W. An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons. JAMA. 2008 Dec 10; 300(22):2669-71. PMID: 19066388.
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    159. McGuire SE, McGuire AL. Don't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies. Genome Res. 2008 Nov; 18(11):1683-5. PMID: 18974262.
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    160. McGuire AL, Colgrove J, Whitney SN, Diaz CM, Bustillos D, Versalovic J. Ethical, legal, and social considerations in conducting the Human Microbiome Project. Genome Res. 2008 Dec; 18(12):1861-4. PMID: 18971311.
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    161. McGuire AL. Identifiability of DNA data: the need for consistent federal policy. Am J Bioeth. 2008 Oct; 8(10):75-6. PMID: 19003718.
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    162. Whitney SN, McCullough LB, Frugé E, McGuire AL, Volk RJ. Beyond breaking bad news: the roles of hope and hopefulness. Cancer. 2008 Jul 15; 113(2):442-5. PMID: 18484591.
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    163. McGuire AL, Fisher R, Cusenza P, Hudson K, Rothstein MA, McGraw D, Matteson S, Glaser J, Henley DE. Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. Genet Med. 2008 Jul; 10(7):495-9. PMID: 18580687.
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    164. Whitney SN, Holmes-Rovner M, Brody H, Schneider C, McCullough LB, Volk RJ, McGuire AL. Beyond shared decision making: an expanded typology of medical decisions. Med Decis Making. 2008 Sep-Oct; 28(5):699-705. PMID: 18556639.
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    165. Wheeler DA, Srinivasan M, Egholm M, Shen Y, Chen L, McGuire A, He W, Chen YJ, Makhijani V, Roth GT, Gomes X, Tartaro K, Niazi F, Turcotte CL, Irzyk GP, Lupski JR, Chinault C, Song XZ, Liu Y, Yuan Y, Nazareth L, Qin X, Muzny DM, Margulies M, Weinstock GM, Gibbs RA, Rothberg JM. The complete genome of an individual by massively parallel DNA sequencing. Nature. 2008 Apr 17; 452(7189):872-6. PMID: 18421352.
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    166. Whitney SN, Alcser K, Schneider C, McCullough LB, McGuire AL, Volk RJ. Principal investigator views of the IRB system. Int J Med Sci. 2008 Apr 02; 5(2):68-72. PMID: 18392146.
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    167. Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, Meslin EM, Murphy J, Nussbaum RL, Otlowski M, Pullman D, Ray PN, Sugarman J, Timmons M. Research ethics recommendations for whole-genome research: consensus statement. PLoS Biol. 2008 Mar 25; 6(3):e73. PMID: 18366258.
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    168. McGuire AL, Caulfield T, Cho MK. Research ethics and the challenge of whole-genome sequencing. Nat Rev Genet. 2008 02; 9(2):152-6. PMID: 18087293.
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    169. McGuire AL. 1000 Genomes on the Road to Personalized Medicine. Per Med. 2008; 5(3):195-197. PMID: 20041040.
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    170. McCullough LB, McGuire AL, Whitney SN. Consent: informed, simple, implied and presumed. Am J Bioeth. 2007 Dec; 7(12):49-50; discussion W3-4. PMID: 18098025.
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    171. McGuire AL, Cho MK, McGuire SE, Caulfield T. Medicine. The future of personal genomics. Science. 2007 Sep 21; 317(5845):1687. PMID: 17885116.
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    172. McGuire AL, Gibbs RA. Genetics. No longer de-identified. Science. 2006 Apr 21; 312(5772):370-1. PMID: 16627725.
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    173. McGuire AL, Gibbs RA. Meeting the growing demands of genetic research. J Law Med Ethics. 2006; 34(4):809-12. PMID: 17199822.
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    174. McGuire AL, McCullough LB, Weller SC, Whitney SN. Missed expectations? Physicians' views of patients' participation in medical decision-making. Med Care. 2005 May; 43(5):466-70. PMID: 15838411.
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    175. McGuire AL, Majumder MA, Cheney JR. The ethics of lawyer-ethicists. J Law Med Ethics. 2005; 33(3):603-7. PMID: 16240740.
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    176. McGuire AL, McCullough LB. Respect as an organizing normative category for research ethics. Am J Bioeth. 2005; 5(1):W1-2. PMID: 16036642.
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    177. Whitney SN, McGuire AL, McCullough LB. A typology of shared decision making, informed consent, and simple consent. Ann Intern Med. 2004 Jan 06; 140(1):54-9. PMID: 14706973.
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    178. McGuire A. Clearing the mist. Am J Bioeth. 2002; 2(4):W7. PMID: 12762909.
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